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Infant feeding

Get advice and support with infant feeding from other users here.

Are breast feeding & breast screening incompatible? Long story..sorry!

15 replies

abigboydidit · 13/01/2012 22:53

So..am starting to feel a bit picked on by my local health service, despite their assurances about "encouraging BFing mothers". I've already had to complain about my HV & GP (previous thread here) & don't feel I need to complain again..but am also feeling a bit lost and unhappy.

To briefly summarise the most recent situation, I had problems with blocked ducts from mid-November last year. After a course of antibiotics I was still suffering with general pain and morning engorgement (which was making it hard for me to sleep) & a very noticeable lump had appeared. No change after 2nd course antibiotics, so I was referred for a breast screen. I should mention that DS is now 7.5 months old, still BF & has a CMP allergy & I've always been pretty rubbish at expressing.

I was given two appointments on consecutive days. The 1st for a mammogram and the 2nd for feedback. I expressed milk for the mammogram day and planned to take DS with me for the results. However, after being kept waiting for just over half an hour (& it is a half hour drive each way to the hospital) I was sent away without the scan because I was BFing & told I would get an ultrasound the following day instead. I realised this wouldn't be ideal for taking DS with me & I managed to express just enough for 1 feed after a lot of effort. On the day, I was seen by a lovely Dr who did question when I would be giving up BFing (I thought they were supposed to encourage it as a protective factor & have to admit was expecting a bit of a pat on the back!), sent me for an ultrasound and said I would need to come back to her for results. In all this took over 3 hours, by which time DS was needing fed (pleading calls from DH in increasing states of panic!) and I was desperately asking them to hurry the process along. They only asked once why DH didn't just give him formula, as they seemed to get the CMP allergy issue. However, the scan was inconclusive and it seems I now need to go back for a mammogram and a needle biopsy. This seemed to be put down to the fact I was BFing and the consultant was even summoned to ask me when I planned to give up BFing (suggesting they would wait till then to do the checks). Am already anxious about how I will get enough EBM for the appointment, as they said I may be hanging around for most of the day.

So, after all that..my question is whether BFing is really so incompatible with breast screening? I don't want my stubbornness to put my health at risk but do feel as though I'm not being supported. Any pointers to evidence or experience would be great! I've had a scout about but can't find anything. Thanks for reading to the end!

OP posts:
claireinmodena · 13/01/2012 23:12

So sorry you have to go through this...it must be scary!

One if the problems with breast screening and breastfeeding is that the breast tissues is very different during beeastfeeding making diagnosis more difficult. Its a tough call. Having had bc myself I have often heard of breastfeeding or pregnant women being diagnosed late because of this kind of problems.
Most likely you are fine but I imagine the doctors' attitude can be explained in that they want to be thorough and make sure there's nothing wrong going on. If they want to do a biopsy that should rule out the imaging diagnosis problem I would think.

claireinmodena · 13/01/2012 23:16

Sorry pressed post too quickly.

I dont know if I helped at all, but do get checked out for your own peace of mind. But you shouldnt have to give up breastfeeding as far as I know.

Best of luck xx

TruthSweet · 13/01/2012 23:21

Have you seen this article, this thread, and this article?

I have no experience of mammograms/ultrasounds while bfing but you could try a local IBCLC to see if they could rec. a good technician who is experienced in doing scans on bfing mums?

abigboydidit · 13/01/2012 23:24

Thanks for replying. I think I'm just a bit touchy to be honest (blame lack of sleep thanks to wonky boob!) and feel everything seems to be stopping me from BFing rather than supporting me. I have no idea how I'll pump enough for the next appointment and also worry that the mammogram will be agony if I have about 2 feeds-worth in them! I'm already fairly self-conscious about still BFing and felt downright embarrassed at the appointment when they badgered me to give an exact timeframe for when I planned to stop. Has totally upped my admiration for people who are still BFing beyond a year!

OP posts:
abigboydidit · 13/01/2012 23:26

Oh - thanks TruthSweet - you're always coming to my rescue! Off to read in bed...

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claireinmodena · 13/01/2012 23:30

Would you consider giving your ds some formula just for the day of your app if you cant express enough? It wouldnt harm him or compromise bfeeding at this stage.

abigboydidit · 13/01/2012 23:35

He has a CMP allergy and my GP refused to prescribe special formula (long story - previous thread!). He probably would now I've complained but I've been told it has a very distinctive, bitter taste which I have to be honest, I doubt he'd drink given the joy he takes in throwing my hand cooked food around the kitchen if it doesn't meet with his approval

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TruthSweet · 13/01/2012 23:39

Glad to help abigboy - Google is my friend and saviour when it comes down to it!

The articles actually recommend taking baby with you so you can bf right before the scan so the least milk is in the breast (could pump off other side while baby feeds to help things along if he's not a two sided feeder or if it's to close to a previous feed for him to take both).

OH or friend/mum/mil would have to come to look after baby while it's done though.

It's amazing how everything is geared towards saying 'breast is best' but very little seems to support breast being normal when the chips are down.

claireinmodena · 13/01/2012 23:56

I stand corrected, was quoting what I'd been told by my own oncologist (Hmm), but those articles made me look into ug abd I actually found some advice from my local health saying exactly the same! Will have to show it to my dr next time!

Sorry if I confused you and not helped at all!! Blush

TruthSweet · 14/01/2012 00:06

Claire - if you were going by what your onc. was telling you, how were you to know? Bit worrying though Shock Mind you they don't do very much at med school about lactation so I'd be surprised if he/she had a full understanding about bfing....

claireinmodena · 14/01/2012 00:13

You're right in that he is clueless about pregnancy/lactation (just as my obgyn knows less than I do about bc!!) and to be fair they probably deal with very few breastfeeding women, and he is not a radiologist after all. Still!

Come back to let us know how it goes though will you?

thereinmadnesslies · 14/01/2012 09:00

Re the formula - my DS has CMP allergy and I'm (still) BF him age 2. You should press your GP for a formula prescription, or else ask to be referred to the paed allergy team at your local hospital. DS's consultant prescribed Neocate so that he could have milk on cereal without the faff of expressing. It tastes pretty rank and DS would not drink it on its own, but he was happy with it on weetabix.
It's terrible that the drs have treated you do badly for BF. it seems to be the norm, instead of being congratulated for keeping going all health professionals seem to ask is 'when are you giving up' AngryAngry

abigboydidit · 14/01/2012 10:28

Thanks everyone. DS has an appt for the allergy clinic at the end of Feb. Till then he has oat milk for cooking and my milk for drinking! The links re screening were very interesting. Am really not keen on taking DS to the hospital as there'll be so much hanging about and now he's crawling he hates being cooped up in the buggy. I'll take a pump with me in the vain hope I can squeeze out a few drops before the mammogram! The problem was that the ultrasound showed just engorged tissue but there is an obvious, palpable lump. They didn't think it was anything sinister but want to know what it is, just in case. I wonder if I should check what anaesthetic I get for the "big needle in the breast" (yes, they know how to sell it!) too? So much to think about...

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oldmum42 · 14/01/2012 21:52

Goat milk is a better substitute than cmp free formula. All the supermarkets sell pasteurised long life goat milk..... It is much closer to human milk than cows milk is. I used it in cooking for my ds before I stopped bf at just over a year, and now he drinks it as well.

I had a lump investigated while very pregnant, ultrasound inconclusive, so needle biopsy done. Was fine. Consultants and nurse taking history both full of praise for year+ bf of previous ds and intention to do same with 3rd ds, lots of keeping your risks down comments, and that's what we like too hear...... Though was explained being 8 month preg made it harder to see what was going on but no point in waiting to test as bf also caused problems..... So got needle biopsy rather than another ultrasound. There was no anaesthetic. For the needle biopsy I had, 1st attempt pain free, but didn't get sample, second attempt was a bit nippy but not unbearable.

sleeplessinderbyshire · 14/01/2012 22:07

DO NOT give your CMP allergic child goat's milk there is a huge cross reactivity betrween antigens. I'm just wondering iof when they were asking when you were giving up feeding was more because if you wrre simply following WHO guidance and planning to stop at 2 they might think no harm in waiting a week or 2 to do the tests... anyway hope it all goes well and would second the advice to take your DS and a babysitter along and feed him just befiore your appt

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