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Infant feeding

Get advice and support with infant feeding from other users here.

Support thread for all parents with reflux babies...

997 replies

PosieParker · 18/08/2010 16:00

Just thought a pooling of ideas would be useful. Any ideas about meds, symptoms, coping strategies, things to make a baby quiet!!

Symptoms:

Arched back and crying/screaming after feeding
Fussy on/off breast or bottle
Frequent feeding
Little sleep
Constant crying/screaming

(please add)

Meds:

My memory is a little rose on this and I can't remember

Coping

SWING,
pushchair walks
accepting help
Sometimes putting your baby somewhere you can't hear them whilst you have a large gin cup of tea.

OP posts:
Ladybiskybat · 16/11/2010 21:32

Bethylou that's one of the saddest things Ive heard in a long time. As someone who has had a gp suggest I need antidepressants I know how frustrating it can be when they look at you like you're imagining it. What an awful awful situation to be placed in. I hope they will both be ok.

narmada · 16/11/2010 21:40

Gosh how utterly awful Bethylou. I think there needs to be a big awareness-raising campaign about reflux among GPs. I hope the child and family are OK - the stress reflux can place on families is enormous, I agree.

narmada · 16/11/2010 21:41

lady hurray for your decentish sleep, that is really good going. Long may it continue. You deserve it.

We now have omeprazole from the GP, starting tomorrow. Hoping it works. He has been off the domperidone and ranitidine today so god knows what kind of night lies ahead.

bethylou · 16/11/2010 21:46

p.s. I'm not ignoring your individual plights, just a bit worn out at the mo and find it hard to remember how things were when DS1 and 2 were tiny. I hope that's reassuring that I have forgotten a lot about the bad days!

bethylou · 16/11/2010 21:47

p.p.s I am going to start a thread in chat to see if anyone can tell me how best to go about the kind of awareness raising that needs to happen re reflux amongst the medical profession. I don't really know where to start but this has galvanised me.

Fontsnob · 17/11/2010 09:24

How horribly sad. Anything I can do to help with campaign, count me in. I think I'm pretty lucky compared to most dd reflux doesn't seem as bad. Bit of a scare last night though as she had a very small amount of blood in her sick. GP said probably from retching which was a relief but made me feel a bit sad. Hope you all have a good day today.

strawberrycake · 17/11/2010 12:56

Has anyone got an older baby whos pretty much 'over' the reflux but still a reluctant feeder?

DS hasn't shown signs of reflux since starting on nutramigen but whilst refluxy developed a real aversion to eating which he's never got over. HE shows no signs of pain anymore, yet has the same attitude to food. Is anyone else encountering this?

Ladybiskybat · 17/11/2010 15:31

strawberrycake sorry my LO is still in the throes of refluxness...there was a story in the Express (??) of a young boy who refused to eat that my mum cut out and kept for me. Think it was only last week, maybe the week before, could google that?

Fonts love it that GP said 'probably' has he referred you yet??

bethylou would love to help if I can. I have a friend of a friend GP, I could possibly ask for places to start??

Fontsnob · 17/11/2010 21:22

No referal and no change in sick output but no more blood after that one time, thankfully! I am going to try cranial sacral therapy ( so long as it's not hideously expensive) and see how that goes. I have heard good things about it so we'll see!! Will let you know how it goes. How's your lo today Lady?

Ladybiskybat · 18/11/2010 08:04

Fonts Ive heard it can be good too. Is that different to cranio-osteopathy? Remember reading that was good for colicky babies something about realigning their skulls after the trauma of birth?! My Lo has a cold as my dearest eldest keeps saying morning and coughing in his face. We had proper tears yest, eyes full of them. Had quite a bad day refluxing too. He's definitely not improving on these meds. Anyone on ranitidine and domperidone can you tell me how much and how often you give it to your lo and their weights. Im sure he's on less now than when he was 2 weeks old. He was 17lbs 2oz last week and takes 1ml of dom and 0.5ml of ranitidine x3 daily. Fast approaching the golden two week mark but reluctant to see gp due to previous antidepressants remark...shall have to find the time to brush my hair and get dressed properly to show him I am coping rather well this time:-P Think I will also video Ds during reflux moments so he can see it's not just in my mind! Goin to see hv today hope to see how much longer I have to wait for appt. MIL offered to pay privately but I begrudge having to especially as I work for the freaking NHS! On a lighter note, enjoyed purchasing a new 22" flat screen tv with dvd, a half price £60 iron and a new sensor mat baby monitor yesterday all for the pricely sum of £20...i love tesco vouchers! Hope you are all having better times :)

Fontsnob · 18/11/2010 10:10

I think they are the same thing, am playing phone tag with the guy that does it at the moment but am really hoping to get an appt asap. Was watching dd being woken up by the reflux last night, seeing her little face all scrunched up because it hurt. :(
Definitely worth asking about the dose, dd is on 1ml of ranitidine 3x a day and is 13 lb. I don't know if your dose is lower as it is combined?
Good job on the bargain buying and good luck with the HV and the GP.....don't brush your hair too much in case they think you're trying to hide something... :)

Fontsnob · 18/11/2010 10:34

Ooo head massage man coming here in half an hour! Better get us both dressed..... I know I'm very slovenly :) fingers crossed it works!

Ladybiskybat · 18/11/2010 11:22

Fonts let us know how it goes. Having nightmare, hv has referred us but paeds got no records. Hv trying to chase it up not happy bunny :(

Ladybiskybat · 18/11/2010 14:35

Ok big mess up with lo referral to paeds. Had to take him to gp (luckily one had blow dried one's hair today :)) as hv thought he might need seeing on the ward as meds not making diff. Gp still reluctant to accept it's reflux as they've not confirmed it with ph study, fully supportive of me saying ds has a fabulous mum etc. Says paeds have recieved referral and will be seen by someone but ?? when. Get this though...thinks my 5 month old son has colic or ibs! I mean, irritable bowel syndrome???:-S then prescribed me an ibs drug not recommended for babies under 6 months, but he is easily that size(!) If I want to try it...you're the fricking doctor not me! Grrr so fed up Angry

Scarabeetle · 18/11/2010 14:51

Enfamil A.R. (anti-reflux) is a formula you can buy without prescription (to clarify what another poster has said) - it really worked for my baby who had awful silent reflux. It doesn't contain any medication - it's just got rice starch in it which thickens in the baby's tummy.

This was such a lifesaver for us, we were about to embark on medication & ended up not needing it.

Can order the formula at Boots.

Scarabeetle · 18/11/2010 14:54

Also, worth reading a book by Allison Scott-Wright called 'The Sensational Baby Sleep Plan'. Allison cares for lots of babies with reflux problems and there's all sorts of useful information about it in her book.

umf · 18/11/2010 17:13

Thanks for a brilliant thread. DS1 (almost 4 now) had terrible reflux; no help at all from HV or anyone. DS2 expected imminently, such a relief to know there's information out there.

One question: DS1 hiccuped lots in utero as well as once born. Did others' reflux babies do this? DS2 hasn't hiccuped once - I'm really hoping this means he won't have reflux...

narmada · 18/11/2010 21:00

Umf,

re hiccuping. My DD hiccuped so much in the womb, and she turned out to have terrible reflux. My DS now 4 weeks, didn't hiccup quite so much - maybe once a day as opposed to about 8 times a day for her. Now, he does have reflux too, but I don't think it is quite as bad as my daughters was AND we have been able to act more quickly, armed with more information, and he was diagnosed at about 10 days and on meds by 2 1/2 weeks. I'm not saying that's necessarily great, but at least it means he's on the medical radar and getting help. Not sure if that helps???

lady what a balls up with the referral. Hmm, those doses sound low compared to what my son was on at 9 1/2 lb - he was on 0.8 ml of domperidone 6 times a day, and 0.55 ml of ranitidine 3 x daily. Have stopped that now and moved onto omeprazole 3mg once daily. I think it may be helping slightly although getting the damn stuff into him is quite challenging as it comes in tablet form and the tablets aren't quite as dispersible as the doc made out!

lady, IBS???! I am not a doctor, but hell, that sounds like a shot in the diagnostic dark to me. I think it's on the crying over spilt milk website where they have a diagnostic/ treatment pathway for reflux babies. Might be worth shoving under your doctor's nose - or maybe not if s/he is not very amenable.

narmada · 18/11/2010 21:01

Sorry for the strange formatting there .... tired brain.

Fontsnob · 19/11/2010 00:33

Cranio Man came and did his stuff this morning. Said she might have worse symptoms for 24hrs but she seemed about the same so will see if it makes any difference from tomorrow.

IBS???

Ladybiskybat · 19/11/2010 07:20

Narmada, had heard of that website but never used it before. Will definitely be taking it into my gp. He really seems to dismiss reflux completely. Fonts, hope you have a good day and that it does work some. Umf, both my DS had hiccups in-utero. Cant remember either having them significantly worse than the other. On reflection now I think Ds1 may have had some reflux but being clueless and naive first time round I just thought he liked to stand up a lot and just didn't like being winded. Ds2 has awful reflux so who knows? We had an awful, awful day. Ds refused a lot of feeds refluxing badly. Went to my mums for tea, sat down to eat and had a momentary lapse of concentration that will haunt me for a long time...Ds2 reached and touched my plate...for some reason was so hot you could have fried eggs on it. So cue the most awful, haunting cry you have ever heard and trip to a and e where the receptionist looked down her nose at me and I was told to start moving hot drinks when he starts to walk. I was a dithering mess wracked with guilt that my poor little man on top of his reflux now has 4 huge blisters on his hand that are all bandaged up. Looks like a little boxer. Awfulmother.com...he really needs a break :(

Fontsnob · 19/11/2010 10:15

Lady massive hug to you both. Sorry that that happened, you're not in anyway an awful mother. I accidentally got chilli on dd when she was about 6 weeks. It was on my hands from cooking ( I had washed them) and I was putting her cream on her and she started screaming. When i figured out what it was we got in the bath for a feed until it stopped hurting. It's such an awful feeling knowing (and hearing) that you've caused your baby pain. Hope your day is better today.

narmada · 19/11/2010 10:23

layd it's not your fault- don't blame yourself. it is the sleep deprivation. we have all had temporary mental 'freezes' like that. hope ds better soon.

TottWriter · 19/11/2010 15:55

DD has just been "diagnosed" as having reflux by the HV, which prompted me to read this thread from the start (with much nodding at symptoms, and gratitude that she does at least sleep at night!)

So glad I found this thread - she is now 4mo, and vomits all the time. Well, not literally. She tends to vomit a little straight after a feed, especially if she burps, though she doesn't really get windy (BF baby). But whe isn't often happy on her back (though doesn't seem to mind lying on the changing mat Confused go figure!) and apart from at night, doesn't really sleep unless she is in my arms. Even at night I cuddle her to sleep then lay her in her sleeping bag. During the day she likes being upright, preferably being held in a standing position, or being carried upright, as long as I am standing too and not sitting, which makes for a lot of physical tiredness, even though I'm not sleeping that badly. I also have a 2.5y.o DS, who gets under my feet a lot if I'm doing laps...

Since reading this thread, I basically haven't put DD down Blush and have been holding her upright - she's fast asleep and has hardly throuwn up at all, which is a massive relief.

I'm also lucky that she takes a dummy. She refused at first, as she used to gag on it, but we tried a few different types and eventually she took to the Avent 0-3 month ones, though they only stay in for a few seconds. Still, it's enough to calm her down when she's screaming too much to latch on, as long as it's not pain. (If there's anyone still trying with dummies, what we did was rest it on her lip for a while and just let her lick at it, and then bit by bit she got used to having it in her mouth. It also seemed to get easier for her as she got bigger.)

Someone mentioned earlier about things being better in the mornings - I would definitely agree with that. DD is at her worst in the evenings - the other night she was quite literally screaming full bore for an hour solid, and only stopped when she wore herself out so much that she was half asleep, and I was able to get her to latch on for a feed. We have good days and bad days, but the bad ones end up with me walking circuits of the living room until past midnight, silently begging her to go to sleep. Sad DP is my full time carer (I have epilepsy), but has clinical depression himself so can't cope with the stress when she is crying endlessly - he struggles with DS who obvioulsy wants more attention at times. So hard to do things with him when DD cries most of the time if she is put down. We have a sit-me-up which helps for a while, and on good days she will lie on her back chewing a toy, but a lot of the time she has to be held or she screams.

Oh god, just realised how long this post is going to be... sorry!

krisskross · 19/11/2010 16:00

our DD had silent reflux- repeated talks to HV and breast feeding counsellors could not get to bottom of it. Gaviscon did nothing but omeprazole was like a miracle- she literally changed in 3 days from 4 feeds out of 6 being awful to 4 feeds out of 6 being fine.

We only got to the bottom of it because we were desperate and paid £100 to see a private BF counsellor who suggested reflux within mins of watching her feed.

Good news it- it gets better! She is 16 months now and we have not given her medication in 4 months and she is fine, so don't give up, it will get better.

Good luck.