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Black women with AdHD / autism How to push testing?

2 replies

ChirpyRedMoose · 17/02/2025 22:34

I'm a 34 yr old black female who has struggled all my life to cope in social situations, I cannot not stand being amongst large groups of people, or just people in general I feel like my heads going to burst . I have no friends and don't maintain or have any meaningful relationships with any family members. ( I don't actually want to be this way) but overall prefer to be alone. I have always been told I look mean or miserable when I'm just being me , I struggle to hold conversations with others and when I do , I become anxious and mumble or talk about a interest i have too much. I also question myself about every interaction I have over and over.

My day to day life is pretty tiring .I end most days with a headache tryng to understand people . I have been working the same job for a number of years and till this day I still feel uncomfortable everyday and cannot find a way to control my excessive thinking whilst there or anywhere.

My GP once said to me years ago , he has always known me to be a quiet person but over the years has done nothing but fob me off with anti-dep pills and online counselling that do nothing.
Any advice on how to go about pushing for testing or help this late in life ?
Or things to do , places to visit to help cope with this ?

I

OP posts:
Keepingittogetherstepbystep · 17/02/2025 22:42

Do you have any other GP'S at the practise. If there's a gp with a special interest that might help.

I had a chat with my previous GP about ND and was basically told your 46 tough nhs won't fund it as you've made it this far. That GP left, replacement happens to be dyslexic and so similar chat resulted in forms to fill in and then referral 6 years later. Still waiting but GP is convinced so got me to read up around both adhd and autism and it was very much like a lightbulb moment.

Where I live there's an adhd support group and everyone is welcome regardless of diagnosis.

Justmerach · 21/02/2026 17:15

I have just seen this thread. I don't know if you are still looking to be diagnosed. I am diagnosed with autism. You need to ask your GP and have the reasons why you would like a referral to the autism testing team. Look on the DSM diagnosis for the criteria for autism and NHS for how you can present your case to your GP. My GP referred me to the autism testing team and I was tested by the NHS. If the time to be seen is to long you ask your GP to the right to choose route and some people have done this and been seen much sometimes much sooner.
You can also pay privately, but they don’t sometimes give your scores just a detailed review.
Medical notes from childhood can be helpful for some people to get from their GP.

These links may be useful
I thought these links might help you.

I like Tylan Grant's experience, she is mixed race.
https://lucysanctuary.com/inspirational-people-with-autism

https://bridgeslearningsystem.com/celebrating-black-neurodivergent-role-models/

At the bottom of this link below they have the diagnosis chart

https://www.cdc.gov/autism/hcp/diagnosis/index.html

https://www.nhs.uk/conditions/autism/

nhs.uk

Autism

NHS guide to autism. Find out what autism is and what the common signs are. Get help and advice if you or your child are autistic.

https://www.nhs.uk/conditions/autism

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