How to cope when you know it's coming to the end of your child's life?

[Charliethelabby]

I'm just wondering if anyone else has experience of this. I'm finding it extremely tough.

I don't no OP

But I couldn't read this without sending you a hand hold,I can't begin to imagine

I'm sorry to read that op.

Do you want to talk a little about what is happening?

Oh I have no advice but I can't imagine how I would feel ----
I think just spending a as much time as possible with them is what I would do. Is this your DC? Would it help to talk about them?

My daughter has unfortunately relapsed. Nothing they can do.

Charlie 💐💐💐💐

I'm sure someone will be along shortly who can give advice but I couldn't read and not reply.

I would speak to the drs and get clear information. I would contact MacMillan and get their help and support too.

Is it cancer or something else that's she's relapsed from? How old is is she?

Are you involved with a Children's Hospice ?
We have a severely disabled child and use the hospice for respite care and they also support End of Life care. They help build memories for both you and siblings and offer emotional support.
Our local hospice is called EACH...East Anglian Children's Hospice. I'm not sure where you are based ?

No advice OP but this broke my heart. Wishing you every strength.

No advice but I'm so sorry OP

No advice but I'm so sorry to hear this. It must be a very difficult time for you

I'm so sorry - I read an article this weekend about a mother who managed her son's final weeks and felt it was a 'good' death. She has written a book. It might provide some links for you.

www.theguardian.com/lifeandstyle/2018/jan/21/iwatched-my-son-die-from-cancer-lessons-i-have-learned-sacha-langton-gilks

I know words on a screen are nothing but please know that all mothers are in solidarity with you - sending you love and strength.

I’m so sorry to read this OP. I’m not sure by your post if your child has a cancer diagnosis - but if so, have you received any support from the charity CLIC Sargent? - www.clicsargent.org.uk

If you haven’t, please contact them. Thinking of you and your daughter

I was going to post the same link as Sossidge.

Do you have links to your local children's hospice? www.togetherforshortlives.org.uk/

I am so sorry that you are facing so much sadness

I've only just seen this op. I'm so sorry for what you are going through.

I lost my 18 year old son to cancer 4 years ago. I tried to give him the best death I could. Did what he could manage, which wasn't much, never left his side de so he wasn't alone and frightened, tried to make him laugh as much as possible, told him how much he was loved, made sure he was painfree, allowed him to think he was going to beat it because that's how he dealt with it. Surrounded him with friends and family right to the end. Gave him as much dignity as I could. Held him till he breathed his last. Loved him ferociously and did all I could to let him go when he couldn't take any more.

You will do it for your child because you have no other choice.

Love and strength to you and your family on this horrendous journey. Xxx

I'm so very sorry OP. x

I'm so sorry OP, and to all the other parents that have to go through this. It really breaks my heart.

No advice really but l have a dgd who has Cystic Fibrosis and l can't even bear to think that l could very well outlive her, how her parents live with this shadow god only knows. It is every parents worst nightmare. So sorry this is happening to you and your dd.

So sorry to hear your news op

So sorry OP. I just wanted to echo the solidarity with you and to send you love and strength.

This might be controversial but I do wonder whether denial has it’s place as a coping mechanism here, at least for some of the time.

And then at other times, some sort of acceptance that this is just simply not fair and nothing is going to change that. You’re allowed to feel and deal with this just how you want/need.