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Bereavement

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Stillborn twins, so heartbroken

32 replies

Angie611 · 31/05/2015 17:36

Hi all,

A week ago (24th May 2015) I gave birth to stillborn identical twins. They had developed a condition called twin-to-twin transfusion syndrome at 20 weeks. I had laser surgery to try and stop the condition but it didn't work and 3 weeks later my waters broke and I went into premature labour.

In the time between my waters breaking and the onset of labour (which took 2 days), I was having some desperate thoughts that I feel terribly guilty for now and it's adding to the grief I feel. The neonatal consultant told me that if the babies were born alive at 23 weeks they could try and save them but the chances of severe brain damage were great, but that I could choose to have no intervention in which case they'd surely die. I chose not to let them intervene because I felt my babies had gone through enough and I didn't want them having needles stuck in them or invasive surgery. The doctor said that after 24 weeks they had an ethical responsibility to save them, but I didn't want my babies to have brain damage and live their lives like that. I was so scared of this happening and just wanted everything to be over. I was in such a bad way that I told my mum I wanted to drink poison to kill myself and set us all free from a horrible future.

In the end I got an infection because my waters had gone and I went into labour and gave birth to my two poor little babies. They were already gone and there's nothing the neonatal doctors could have done anyway.

My husband and I are so devastated and I feel so guilty. Not only for wanting things to all be over but because my body failed those two beautiful babies. I feel like such an awful person, I feel like I could cry all day and night. My heart is shattered into a million pieces. I never gave up hope until my waters broke, we did everything we could to save them from the condition they had. But it wasn't enough. I just don't know where to go from here and I just hate myself.

OP posts:
claracluck1978 · 31/05/2015 19:44

OP I am so very very sorry for your tragic loss. TTT syndrome is an awful awful thing that claims too many.
I really hope you have support in RL and from the hospital and medical teams.
Please please do not feel this was any way your fault.
Again, I am so sorry

Letmegetanamechange · 31/05/2015 19:52

Angie I'm so so sorry for your loss Thanks

I don't think I can add anything useful but I just want you to know that you don't have anything to feel guilty for. I know it's hard not to think that but please remember you couldn't have prevented what happened.

I'll be thinking of you, your DP and your two beautiful little babies.

ThroughThickAndThin01 · 31/05/2015 19:56

So sorry for your loss OP. It wasn't your fault Flowers

fufulina · 31/05/2015 20:07

I'm So sorry for your loss, Angie. You must feel exhausted.

Something similar happened to us - although the smallest twin (also identical) died at 18 weeks, which we found out at 20 weeks and then the extensive brain damage in the bigger girl was seen at 23 weeks.

That was 5 years ago, so I'm a long way down the road and my heart goes out to you. Be kind to yourself and each other. The funeral was very hard, but I am so glad we had a funeral. I had counselling which marked a huge turning point in being able to cope.

I would recommend counselling - even if you think you don't want or need it. Maybe in a couple of months.

I'm so sorry. Such a terrible thing to happen. What Preminstreltension said really struck a chord - try and show yourself the kindness and compassion you would to anyone else going through the same trauma.

redautumnleaves · 31/05/2015 20:24

I'm so sorry for the loss of your twins, Elisabeth and Charlotte.

KittyandTeal · 01/06/2015 11:49

Beautiful names. We also had a small service which was lovely.

We have her ashes up at our local crematorium and I find it very peaceful to go and visit.

I have also been having specialist counselling which I think has really helped my expectations. I think at first I thought grief was something you overcame, I now understand it's something that you learn to live with.

My friend told me right at the start 'you will never get back to normal, you will find a new normal and a more comfortable place in your heart for the pain'

I have found my new normal and I'm still working on finding that more comfortable place for the pain

ChatEnOeuf · 02/06/2015 13:40

I'm so sorry for your loss.

My baby boy was also stillborn last week. He wasn't growing so well and I was due to have another scan and to arrange when to deliver later that day. He came rapidly in the early morning and when he was born he had already died. The doctors tried for half an hour to bring him back but couldn't.

I completely understand the feelings you describe of guilt and of your body failing your babies, I feel exactly the same. Even though people are telling me it isn't the case, it doesn't stop those feelings.

Did you get to spend some time with your girls? I think that helped me a little.

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