Thanks everyone.
There is support out there, so before anyone goes off hunting around the internet, I probably already know about it! I'm very much in touch with the nurses and others that looked after my son and the midwife I'm seeing has been brilliant. In fact I can't speak highly enough of the NHS - everyone has been very considerate, even down to me having the same doctor do my 12 week, 16 week and 20 week scan, so that I did n't have to explain it from scratch everytime.
There is a group called Compassionate Friends that I've been to once and will probably go again. I'll give it a go, but it did n't seem very me. Everyone there had lost a child, but it was very wide ranging in experience and mainly women in their 50s. It ranged from one woman who had lost a 30 year old to breast cancer, some having had teenagers commit sucide and some car accidents. Let's face it - not a bundle of laughs. I found it very heavy going, but I think it depends on the people there that month, so I'm going to give it a try until the baby's born. It may sound odd, but I hoped for a bit of light relief in the group, as well as all the heavy stuff.
I'm doing pregnancy yoga and to be honest I'm finding that a great support. It really helps me relax and I enjoy it.
Obviously I'm missing my son terribly and that is not getting any easier, but dh and I do find peace from the fact that he is free from the disease and the hard times he had at the end.