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Is it OCD? And if not, how to handle it? ANY advice would be welcome...

23 replies

Ants · 20/06/2008 14:13

Hi, I had a brief search through the archive, as well as on Google, before posting this message, but I have not found behaviour quite like this... so here it goes:

Ds, who will be 3 in August, is increasingly preoccupied with his routines. I don't mean the handwashing or the 'lining up things' obsessions, but how certain everyday tasks are carried out.
He has to be the one opening and closing doors, the first one in and the first one out. The first one up and down the stairs and into the bath and out of the bath.
Practically every day we go through a mini park on our way to various places. Approaching the park from a certain direction, we have to follow a set routine. Approaching the park from the opposite direction, the routine alters accordingly.
He also has to be the one pressing the buttons (lifts, traffic lights, bells). God help us all if I dare not paying attention and press the bell out of habit...

This has been going on for what seems like ages, and there is no sign of getting any better. I think he must have started exhibiting such behaviour the first time he was able to express and explain himself adequately, when he was about two.
I try to go along with it as much as possible, since I had a very strict upbringing, and I know how dreadful it is not to have any choice or free will.

However, sometimes it seems that the more I humour him, the worse he gets, and if I let him, the whole family's life would revolve around his little habits and routines.
There are better periods, when it all settles down a bit - probably because I am in a position where I have the time and patience to 'obey his compulsions'. At other times, it all flares up, normally (and, I do realise, not coincidentally) at times of tension and stress. It's always the worse at times of illness or extreme tiredness.

What really gets me, is when he changes the 'rules', but does not tell us about it. So I just plod along, as usual, saying and doing the right things at the right times, and then suddenly all hell breaks loose.

Every now and again, when an obsession really is getting out of hand, we put our foot down and say no. In the past he would throw a tantrum, but after about ten minutes he would get over it, and then he would not attempt to 'enforce' the same routine again. However, just lately, he will not give in. Yesterday, he threw a massive tantrum, made himself sick, and carried on screaming for another half an hour. My husband and I agreed that we should not give in, but the situation was really getting worrying, so in the end we made a compromise.

I can feel the control slipping away from me and I would really appreciate any advice. We normally follow the supernanny method (whatever it's called), try to reason with him, give him a choice, explain the consequences and act on it. Today I actually had to put his bike in a bin, in order to be able to carry him home, as well as pushing dd's pram. I know that it will break his heart, but I think he needs to learn a lesson about how far to push his boundaries (and Mummy).

Sorry that this ended up such a long message. As I said before, any advice would be welcome.

OP posts:
Are your children’s vaccines up to date?
MaryAnnSingleton · 20/06/2008 14:17

not sure about this ( from an OCD perspective)...do you mind if I link to another thread about children with OCD - it might help or you might want to contact the OP ...let me find it...

MaryAnnSingleton · 20/06/2008 14:18

[[http://www.mumsnet.com/Talk?topicid=138&threadid=512495#10388592 here we are}}

Enid · 20/06/2008 14:18

sounds like control to me

dd3 likes to do everything herself and has a blue fit if heaven forbid I should do her car seat straps or push the straw into her drink

herbietea · 20/06/2008 14:19

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MaryAnnSingleton · 20/06/2008 14:19

sorry, here it is

LeonieD · 21/06/2008 08:47

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Ants · 21/06/2008 22:26

Thanks everyone for your replies!

MaryAnn, thanks for the link, I am slowly, but surely making my way through it...

LeoniD, I just had a look, and non of the impairments really apply, but funnily enough the thought has occured before now... My HV reassured me at the time, and she was quite adamant that is was not the case.

I've arranged a visit from my HV for next week, I just hope that she will be willing to hear me out and be able to offer support...

OP posts:
LeonieD · 22/06/2008 08:50

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MannyMoeAndJack · 22/06/2008 13:44

I would second having a paed. assess your ds based purely and simply on the fact that your ds's obsessions with his routines have been going on for about a year. Good luck with getting some answers.

Ants · 22/06/2008 21:52

I am quite aware that our local HV's first line of action is to calmly explain that there is nothing wrong with ds, I am just being a neurotic mother... this is why I was asking for advice on Mumsnet, and I am so glad you told me about the developmental pedeatrician, I wasn't even aware that you can request an assessment by them...

By the way, I didn't just sling the bike in the bin (however tempted I was...). It's in the bin, because ds has refused to walk or ride his bike home, and insisted on being carried instead. I had to get home, as both him and dd were very tired and unhappy. I explained to him that I could not carry him, the bike, and push the buggy at the same time. Therefore the buggy would have to be left in the bin. I gave him numerous chances to change his mind, and either walk or ride the bike, but he refused. So the bike had to be left behind in the bin .

OP posts:
elizabethbob · 23/06/2008 07:25

I think that you would be best getting a community paediatrician referral from your health visitor. They usually have to see new referrals within 6 - 8 weeks. It sounds like it may be a "social communication" problem. His rituals fit more with this than OCD. Community paediatricians will assess his development including social development and can arrange support and refer to relevant therapists. Hope that helps.

gagarin · 23/06/2008 07:50

TBH this sounds relatively normal!

Esp for a strong willed child - and for any 3 year old whose bike was thrown away by a cross mummy. He must have been devastated (don't blame you but do understand him [)

I would suggest you spend hours and hours playing turn-taking games to slowly instill the idea that he cannot always come first and do things his way.

LeonieD · 23/06/2008 08:31

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Romy7 · 23/06/2008 10:14

how long has he been in charge in your house?
taking away some of his control at last is going to cause a few ructions.
every child will try it on with this stuff - only you can decide whether it is necessary to refer to the paed - personally i'd be setting the boundaries myself for a good period before getting to that stage.
and 3 year olds are well known for changing the rules.
how else do you test whether you are still in control or not?
only my opinion as a result of having strong willed children, obviously - only you know whether the paed referral is essential.

coppertop · 23/06/2008 10:15

I would ask for a referral to see the paediatrician (developmental ones are probably best if possible). If everything is okay they will be able to give you some reassurance. If your ds needs help then hopefully they will be able to point you in the right direction.

Reading your post brought back a few memories of ds1 at that same age. He had so many particular rituals about the way things had to be done that a trip to the Post Office and back (usually about 10 minutes each way) would take 1.5hrs. Ds1 was later diagnosed with ASD.

In the meantime it might also be worth speaking to someone from your local portage service. They help parents who, for whatever reason, need help with their pre-school aged child. They basically come to see you at home (every 1-2 weeks) to see how you are doing and to give you lots of ideas about strategies to try. Ours was an absolute life-saver. I'll have a look for their website for you but you can probably find them just by googling your local area and portage.

coppertop · 23/06/2008 10:17

Portage website

AttilaTheMeerkat · 23/06/2008 10:20

You need to ask your GP to refer you to a developmental paediatrician asap. No HV is qualified enough to advise you properly on such a matter. Portage should be able to be accessed through your GP.

mindfulmama · 23/06/2008 21:35

YOu are a brave and comitted Mother who needs to be heard, i think. I reckon you already thought you may have a ASD issue with your ds, that is why you wanted input?? I do think you would benefit from support not just in terms of a label but for help implementing strategies to support your ds with out either you losing it or him missing out. Try your GP and ask for a multidisciplinary assessment at a child dev centre, tha way you get a paed, a psych, SALT and Ot all in one...
Good luck.

Seuss · 23/06/2008 22:40

I've done the whole 'sobbing child under each arm whilst still trying to push the buggy' thing - it's hard to know what to do for the best when you're in that situation - poor you! I agree about going to the GP for a referral - it may be daunting but it's good to know what you are dealing with.

mumtofour · 23/06/2008 22:55

Hi Ants

Firstly can I say what a fab mum you are to take your concerns and be asking others for their opinion. This I know is not an easy thing to do as all our opinions differ and some may upset you. For you to be asking the questions it shows your gut feeling is that something is not right. My advice would be to follow that gut reaction and talk to your HV about your concerns. Compulsive behaviour can be linked with many special needs and you really need advice on them. You don't say in your post whether your DS is verbal as speech and communication difficulties can also steer towards certain diagnosis.

Othersideofthechannel · 24/06/2008 05:24

Ants, I don't know much about autism and OCD so I am sure it is best to get your concerns checked out. But the bike in the bin incidents sounds like something that could have happened to me several times with either of my children at that age and still could happen with DD who is 3.6. If they are too tired to go on at this age they can be very stubborn about being carried.

I can think of three times where we have had to abandon the toy buggy or a trike but fortunately we live in a village so I usually have to ask a retired person who is gardening if they wouldn't mind keeping the item safe until DH can get it on his way home from work. Once I had to hide something in a bush explaining to the child in question that it might not be there when I went back for it but fortunately it was.

Ants · 25/06/2008 20:55

First of all, I would like to thank you all again for your support and input. I am glad that I received opinions from different perspectives - I feel it helps me to stay on an even keel.

I had the appointment with the health visitor yesterday, and although she does not think that there is any cause for concern, she offered to refer ds to be assessed.

Mumtofour - I have read and re-read the triad of impairments for ASD, and it just does not seem to fit at all, apart from the thing about the routine. Ds is a very social little boy, has been for an early age. His language skills are coming on nicely, and is able to express himself quite well. He also started to engage in imaginative play, I only noticed it recently, but it is quite amazing to see how many new things he comes up with every day, and how much more in-detailed his games get every day...

OP posts:
mindfulmama · 25/06/2008 21:44

Ants, good that you have talked it through. maybe he is just a v bright and slightly anxious/rigid personality who is sensitive to your stress levels too? Maybe you need a bit of Ant space to recharge to help you manage high maintenence child? Have you read any books on kids who are like this there are a few out there and they can sure help!
Good luck

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