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Seeking Advice on ADHD/Autism Diagnosis Roadblocks – UK

4 replies

JeremyLeach · 29/01/2025 09:44

Hi,

I’m looking for advice on securing an ADHD/Autism diagnosis for my 12-year-old grandson in the UK.

The major obstacle we’re facing is that his secondary school does not recognise any ADHD/Autistic traits in him. Instead, they claim he simply has "lack of concentration" and "disruptive behaviour." However, the family—and other health professionals involved due to his existing health conditions—clearly see that he is masking at school, suppressing his symptoms to fit in with his classmates.

Despite masking being a well-documented phenomenon in medical and psychological fields, the school refuses to acknowledge it. And here’s the real problem: their backing appears to be critical to the diagnosis process, yet they are the very ones blocking it. A cynical person might suspect they simply don’t want to deal with the paperwork and effort required to support his assessment.

It feels deeply unethical that a child is being denied access to diagnosis and potential life-changing treatment because of outdated policies, bureaucratic hurdles, or lack of understanding. Studies show that stimulant medication (e.g., Ritalin) improves ADHD symptoms in about 80% of cases. We personally know people whose lives have been transformed by the right diagnosis and treatment—it’s heartbreaking to see him struggle when help should be available.

Has anyone else faced similar barriers? How did you navigate them and push for an accurate diagnosis despite school resistance? Any advice would be hugely appreciated.

Thanks for reading!

OP posts:
TinyMouseTheatre · 29/01/2025 18:47

Yes and we ended up going through the GP.

JeremyLeach · 29/01/2025 20:20

Ah right, thanks for that. If you don't mind me asking, was the GP able to help with getting proper diagnosis, treatment and support? It could well be what we need to do.

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TinyMouseTheatre · 29/01/2025 20:38

The GP referred us to the Paediatric Team. It was a long wait but we did get a diagnosis on the end.

If you ask @MNHQ to move this over to the SN Children Section you might get some more helpful responses in there Wink

JeremyLeach · 30/01/2025 10:35

Thank you so much for this. Very much appreciated.

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