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Can anyone give me hope?

7 replies

RebeccaTee · 22/10/2024 04:40

Hi all!
Just sat up as my 22 month old has kept me up again... Long story short she was hitting all her milestones up until 6 months- I had a healthy pregnancy and no problems during delivery. She was born at 37 weeks 2 days so although early not majourly premature. She is so delayed to a point I don't see any children like her at nursery or any of the clubs she goes to. She babbles and will grab for known objects if I request. She can stand, cruise and crawls around with no issues. She is completely independent at sitting now but we didn't get to this stage until she was about 11 months. Obviously we've flagged the issues and so have HV's so she's seeing a paediatrician, he's said she's got hyper mobility and low muscle tone but we need to do tests to find out why. He said everything else seems normal and he thinks she'll catch up eventually but we need to do blood tests etc. Sorry but I'm just venting as we're stuck in limbo and haven't heard from them for nearly three weeks. I feel so alone because every parent I talk to has a child her age that is talking, walking and doing all the things she should be. I took her to soft play on my day off the other day and I felt so bad for her as she just wanted to do the things the other children were doing but couldn't. The truth is I'm so worried it's driving me mad. I run a care agency for individuals with disabilities and my husband is a care manager for a residential home for individuals with disabilities and although we love and respect all the clients, we see the struggles them and their families go through so it's always been a worry of ours even before having children and now it feels like it's coming into fruition. At the end of the day she is my daughter and I will always love her unconditionally and do whatever I can for her but I'm so lost and can't deal with uncertainty. I would feel so grateful if anyone has any positive stories. Even if it is linked to other conditions. I just have to hold on to hope because I can't give up on her. Thank you if you've read this far and have listened to my rant.

OP posts:
PolaroidPrincess · 22/10/2024 17:02

It's really good that the Paediatrician has said that they think she'll catch up.

Have they made any other referrals, for instance hearing test, SLT, OT, physio?

RebeccaTee · 22/10/2024 21:09

Thank you. :) Yes she has a physio which is all positive, just really hope she makes progress. They don't think there is any issues with hearing but the P said there is going to be a series of tests so they'll probably look into that.

OP posts:
ThirdTimeLucky27 · 20/11/2024 12:58

RebeccaTee · 22/10/2024 04:40

Hi all!
Just sat up as my 22 month old has kept me up again... Long story short she was hitting all her milestones up until 6 months- I had a healthy pregnancy and no problems during delivery. She was born at 37 weeks 2 days so although early not majourly premature. She is so delayed to a point I don't see any children like her at nursery or any of the clubs she goes to. She babbles and will grab for known objects if I request. She can stand, cruise and crawls around with no issues. She is completely independent at sitting now but we didn't get to this stage until she was about 11 months. Obviously we've flagged the issues and so have HV's so she's seeing a paediatrician, he's said she's got hyper mobility and low muscle tone but we need to do tests to find out why. He said everything else seems normal and he thinks she'll catch up eventually but we need to do blood tests etc. Sorry but I'm just venting as we're stuck in limbo and haven't heard from them for nearly three weeks. I feel so alone because every parent I talk to has a child her age that is talking, walking and doing all the things she should be. I took her to soft play on my day off the other day and I felt so bad for her as she just wanted to do the things the other children were doing but couldn't. The truth is I'm so worried it's driving me mad. I run a care agency for individuals with disabilities and my husband is a care manager for a residential home for individuals with disabilities and although we love and respect all the clients, we see the struggles them and their families go through so it's always been a worry of ours even before having children and now it feels like it's coming into fruition. At the end of the day she is my daughter and I will always love her unconditionally and do whatever I can for her but I'm so lost and can't deal with uncertainty. I would feel so grateful if anyone has any positive stories. Even if it is linked to other conditions. I just have to hold on to hope because I can't give up on her. Thank you if you've read this far and have listened to my rant.

Hi. I'm currently having issues with my 11 month not sitting unassisted. How are things for you now?

RebeccaTee · 20/11/2024 13:13

Hey, aww bless you. So she's nearly two now and even at 11 months, if I'm being honest she still had issues with sitting unaided, she would lean forward and we still weren't comfortable with leaving her sat unaided. Now that's not an issue at all. She sits perfectly fine and will sit on her own in the bath etc. We had to really build her core so were just googling core exercises for babies. Absolutely no issues with sitting unaided now so I think yours will get there in the end. :) She's a lot smaller than others her age (only on the second centile) and has low muscle tone so I think they are definitely contributing factors!

OP posts:
ThirdTimeLucky27 · 20/11/2024 13:26

RebeccaTee · 20/11/2024 13:13

Hey, aww bless you. So she's nearly two now and even at 11 months, if I'm being honest she still had issues with sitting unaided, she would lean forward and we still weren't comfortable with leaving her sat unaided. Now that's not an issue at all. She sits perfectly fine and will sit on her own in the bath etc. We had to really build her core so were just googling core exercises for babies. Absolutely no issues with sitting unaided now so I think yours will get there in the end. :) She's a lot smaller than others her age (only on the second centile) and has low muscle tone so I think they are definitely contributing factors!

Thank you so much for replying and really pleased to hear your little one is doing well. My girl is also very small and always has been so I do wonder if this isn't helping.

RebeccaTee · 20/11/2024 13:32

You're welcome.:) I completely percent understand. It's so hard when you see others around their age doing more too. I really do think that some just take longer than others so try not to compare. Apparently Einstein did not walk or talk until he was three. So there we are haha!

OP posts:
ThirdTimeLucky27 · 20/11/2024 13:36

RebeccaTee · 20/11/2024 13:32

You're welcome.:) I completely percent understand. It's so hard when you see others around their age doing more too. I really do think that some just take longer than others so try not to compare. Apparently Einstein did not walk or talk until he was three. So there we are haha!

😂😂 Well that's good to know! Thanks for the reassurance ♥️

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