17 month old doesn't talk

[Pineapplecake23]

My 17 month old still hasn't said first word. Only just started walking along furniture.

Anyone else's LO been like this? Did they catch up? Did anything turn out to be wrong?

They are being monitored but no one is telling me anything. Just saying at 2 they will do any necessary referrals.

Who is monitoring them @Pineapplecake23?

Health visitor every couple months. Also seeing a paediatric doctor but that's more routine as she was in neonatal when first born as she was premature. :( but I get very vague responses. "She's come on for her" "we will see at 2 year review, I'll keep monitoring" in some ways not saying anything is more worrying 😅 i asked if there could be something wrong with mobility, or question quite a few things or ask about development problems and get a she's happy we will see.

It would be the lack of information that would drive me crazy too.

When is the HV due to see them again?

Next month :( then after that will be the review in new year.

She is a happy thing but when I see her next to toddlers her age..it really seems miles apart in every aspect. Behaviour, ability, size..everything..I have a newborn..he is cooing..she never cooed..he says more then her 😅 so it's getting hard to ignore and brush off, if it is just a bit behind that's fine. But if it isn't I don't want to be pushing her so she struggles and loses her joy.

It is difficult when you've got one who is a little behind. My second didn't talk at all at that age either.

When the HV comes next week I'd ask for a referral for a hearing test. It sounds as though your DD might need some SLT and they will want her to have had a hearing test to rule out Glue Ear.

Does the HV ever ask you to fill in any of the Ages & Stages Questionnaires before she comes?

Has she said that she'll refer her to Portage too?

Thought I would update, saw the paeds team. Unfortunately not only do they believe Autism/ADHD but suspect it's a chromosome genetic problem. Referrals are being done to various teams and genetics :( the health visitor is being updated by doctors.

That's a lot to take in, especially when she's so young.

Come on over to the SN Chat Section, you should get some support on there

I didn't know there was a chat, thank you. Apparently they need to diagnose quickly as it also means if I have any further children they may well have disabilities. :( but I don't know anything about chromosone disorders so not sure if it has any other complications, I am quite worried. Xx

I can imagine you are worried. The good news is they've taken this seriously and taken action.

Have they offered you genetic counselling? If not, I'd ask about it at the next appointment.

My DC1 is currently having genetic testing, he's waiting for the results. We and the Consultant think he might have a micro deletion of the STS gene. It's been a long time getting to this spit though and he's now an adult.

It might not feel like it now but n the long run you'll be glad that they're doing this now.

Do go over to the SN section. They can talk you through getting DLA, Carers Allowance, getting an ECHPand may be able to take you through the genetic testing.

If you haven't had a referral to Portage, I'd ask for that too.

Near here there's a SN Nursery. It might be worth seeing if there's anything like that in your area. Ours is entirely funded by charity.

I'm not sure, they were saying about her features and the delays also behaviour so said about chromosone disorder and the genetics department to confirm. They wouldn't say what one they suspect but were concerned if my DH and I wanted more children as they would need to then mark it as urgent.
So no idea what that all means. They did do an x-ray though as well. But I gather we can't get any support until it's all formally diagnosed?

I feel a little peeved I've been struggling so long and it's all been minimised. I feel like I have been going mad 😅 4 hours sleep in 3 days at the moment, feel like arse and it's well obviously normal and what every mum deals with when they have kids 😂

Thank you for your support, it means a lot I feel quite lonely with it all. X

Also who do you ask for portage referral? X