Hi there, I’m a first time poster to mumsnet.
My little one has been fussy and cried none stop since he was 2 weeks old, getting a lot worse at 6 weeks and just starting to calm down a bit now, he’s 13 weeks (12 weeks corrected)
However we’ve had bigger fish to fry in that time. He’s been in and out of hosp due to the following:
- Dr concern about head lag and poor head control
- not fixing and following with his eyes
- not making eye contact or looking at faces
- had some sort of potential ‘seizure’ where he went stiff made strange noises and looked off to the side
They did:
- cranio ultrasound - showed nothing of note
- EEG - no seizures while it happened and no obvious brain abnormalities
- lots of bloo tests - all normal but waiting on genetic results
- he saw an opthalmologist ‘fellow’ who said back of eyes were fine but she couldn’t tell us whether he can see at all 😢
They think he could be developmentally delayed and have told us to watch and wait for three months.
They said his head / neck should be a lot stronger at this stage and they’re concerned about his vision.
They’ve put a referral into community paed physios for his head lag, booked a follow up with thè ophthalmologist and the paed consultant in 3 months time.
I’m beside myself and don’t feel able to just sit by and wait for something to happen. They haven’t told me what in particular they’re concerned about, just that we need to keep an ‘open mind’, but I mentioned cerebral palsy to them and they replied it’s on the radar.
I should also add I was induced at 39 weeks, ended up with a cat 1 emergency section due to heart rate and cord round his next twice. He didn’t need resuscitation, he did need oxygen and he came straight round to ward and passed his APGAR.
Does anyone have any similar experiences? I just keep going to the worst case scenario in my mind and cannot enjoy my baby at all
Thank you in advance.