Flat-headed baby: further update

[ManchesterMummy]

Hello everyone,

Another update about my dd and her head - for those who may remember she seems to have a flattened head (at the back).

I took her for an ultrasound last week and the sonographer (I think; may have been a consultant but no introductions/ID badge on him) was arrogant and rude and spoke to me as if I was about 5. I asked for his opinion on the basis that when you go for scans when pregnant you get an idea then and there of what's going on and also the fact he's a professional. He started going on about how there may be fluid on the brain - I asked if there was any evidence of this and he snapped "Well we all need fluid in there or else we'd be dead". He said it "was a big bigger than usual" but without telling me what. When I asked what was bigger he just repeated "it's bigger". He too was surprised that she is physically able to do anything (for the record, she's 5mo and can nearly sit unaided, in fact she can for a few minutes).

We're seeing the paed again at the end of next month as planned so hopefully we might have more of an idea. Suffice to say I'm really very worried now!

Thanks for reading all that waffle.

What was the ultra sound for? Was he checking the sutures?

I'm assuming so NAB. He concentrated on the front, didn't look at the back at all (i.e. the flat part).

I am confused about him doing the ultra sound. My DD had an xray to check if the sutures had fused. Is that what was done?

I think this was what they are looking at - maybe they thought ultrasound would be less traumatic? The trouble is that I took her to the GP because of the shape of her head, and another GP has even read the referral back to me, but the paed thinks it's all to do with the size of her head. Noone seems to believe me (apart from hvs it has to be said) when I say that dd seems to be developing completely normally .

I've asked to see a different paed - perhaps one that I can get some sense out of - but I'm told that this isn't possible. Worse than that, "the system" doesn't allow anyone to establish who we actually saw in the first instance.

You need the assymetry measured. That is your first point of getting this dx.

Thanks - I will give that a go. I'm also going to phone up PALS for the hospital in question and ask if there is anything I can do about seeing someone else - I mean, if you phoned up for an appointment with the GP and they offered you one you couldn't stand, you'd ask to see someone else, right?

Make sure they know what they are doing and don't measure the circumference.

Could you take him to one of the head band companies for a free assesment? We used LOC in Kingston on Thames and were very happy. It cant hurt to have extra information for your next hospital appointment, especially measurements. Starband have a branch in Leeds I think.