Iv just found out my son has bardett beadle syndrome. And I'm absolutely devastated I'm also pregnant by a different man than his farther so praying he don't also carry the fault dna . I'm absolutely devastated they sometimes don't live past there 20s some live to 44years old I feel to blame and can't even imagine having to bury one of my own children . I'm all over the place I can't think and feel in utter shock . I don't know how I'll cope at all. Or if I will I also have bipolar disorder not the psychosis type the hyperactivity type .