11month old doesn’t eat. Barely sleeps

[Anniefred21]

has Anyone ever been in a similar situation?
baby is EBF, has never slept well and spent the first 9 month literally in my arms in bed. Somehow I’ve managed to get him in his own bed, but he’ll generally wake up 4-7 times a night.
i tried to wean him since 5.5months, every way you can imagine. Refuses spoons, bottles, cups, straws, all baby lead goes on the floor. He looks with utter disgust and pokes at it. He doesn’t like getting messy. If any goes in his mouth he immediately spits it out.
bit of back story, he had severe eczema at 3 months, no doubt affected his sleeping. From this and attempting to wean, we discovered a dairy allergy where he comes out in hives. Various meetings with dietitians, HVs, family health workers and the best they can come up with is sitting him in a tub with ginger biscuits (as he puts anything but food in his mouth so thought hard things might help, it doesn’t)they don’t believe he has tongue tie or swallowing issues. They have told me to stop feeding him at night, to reiterate he wakes multiple times and I’m exhausted, the only way he’ll usually settle is to go on the boob, so I’ve tried to reduce but very difficult as he’s hungry (I’m aware this seems like a vicious circle). He rarely settles on anyone else without a hell of a fight.
physically, he’s thriving. Been very mobile from early on. Was 9lb11 at birth, and has now dropped weight in the last 3 months 😞 I’ve started back at work this week and the childminder has resorted to syringe feeding him some milk just to get something into him. Im aware all babies are different, but I’m getting beyond concerned. What I want to know has anyone ever been in a situation and it got better and how?

That sounds very much like my DS although he didn't have any allergies.

With my DS it was definitely Tongue Tie although everyone we saw said he didn't have one until we saw a Tongue Tie Practitioner.

Has he actually lost weight too @Anniefred21 or is he going down the centiles?

If he's actually lost weight he needs to see a GP as soon as possible and you need to make sure they plot his weight every time they see him. Do you still get a Red Book? When my DS was little I insisted the GP tracked the weight in the Red Book, it's useful for the Paeds to see.

Have you been referred to the allergy clinic for testing too?

Thank you for responding. Yes lost weight, a bit, the weigh in was a week after 5 days of a sickness bug where he barely fed/kept it down. Another weigh in in 3 weeks by family health team as they were basically going to see if him being away from me in child care might work. Yes all in the red book.
Due to his eczema they did blood tests for allergies which did show up dairy, eggs and wheat, however they said they can be false readings and go with what you see when foods are tried. So milk is immediate reaction, I’d probably say he hasn’t ingested enough eggs and wheat to know.

did you go private for tongue tie? What age and did this improve things?

That's a little odd of them to say they could be false readings. Have you removed those things from yours and his diet to see if things improve? If he's having things he's allergic to, he could refuse foods because he'll know they hurt.

Sadly DS' TT wasn't picked up until much older so we didn't have it divided but wish we had as it caused problems with sleep, weaning and speech, for a long time.