Please or to access all these features

Behaviour/development

Talk to others about child development and behaviour stages here. You can find more information on our development calendar.

Convinced my DD has special needs

3 replies

Nina9870 · 10/10/2022 20:35

I could do with some advice/ stories about any similar children. I am consumed with worry about my DD who is 2.5

i am convinced she has some sort of special needs. I’ll try and list everything I can, she’s been referred to some therapies, however everything has such a long waiting list I know she’s not receiving all the help she needs. All the doctors/ professionals can tell me is she has a delay

firstly, she’s 2.5 and isn’t walking. She can cruise but cannot walk independently, she currently crawls round. She’s been referred to physio for this and I’m making sure we do exercises etc at home. They have told me she has low muscle tone but they do think she’ll walk.

she doesn’t talk. I think she understands. She definitely knows her name- I think she says ‘hiya’ sometimes, but it’s not clear. She mainly grunts and makes snuffly, wheezing noises. She’s been referred for speech therapy but the waiting list is over a year long 😞

shes docile. She barely cries, even as a small baby she didn’t really cry. Now she’s smack bang in the middle of the ‘terrible twos’ and she’s not even pushing boundaries.

she looks ‘different’. her ears are curled over and she has a severe turn in both eyes. She’s had Botox for her eyes and they’re slightly better but they still look turned in. I think she’s the most gorgeous thing in the world- however I’m aware she doesn’t look like other two year olds.

she doesn’t really like loud noises and startles very easily.

she isn’t interested and doesn’t socialise with other children. She’s happy enough in her own world. Nursery have commented on this to me. She’s only really just started acknowledging the TV.

we’ve been for MRI scans and they’ve come back clear- all people can tell me is that she’s delayed. It’s consuming me and I worry all the time. She’s meeting none of her milestones at her 2 year review.

however shes the most gorgeous child and I wouldn’t change her for the world. She loves snacks and me reading to her and loves kisses on the cheeks ❤️❤️ I just wish I could help her more and support her .

I appreciate no one will be able to diagnose her, but does anyone have a child that’s similar? Or have any idea what her needs are

OP posts:
Kite22 · 10/10/2022 23:38

You might like to get in touch with SWAN UK (Syndrome without a name) for some support.

LAJ15 · 27/06/2023 18:49

Hello, I know you posted this later year but I wanted to know how is your daughter going along and has she been diagnosed with anything or she was just a slow baby? I'm facing the same thing right now and my daughter has about 80% of everything that your daughter has and now she's 21 months and the doctor asked us for a genetics test.

SiouxsieSiouxStiletto · 28/06/2023 09:59

@LAJ15 as this is an old thread, you might need to try an @ if you want the OP to see your reply Wink

New posts on this thread. Refresh page