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20 month old autism concerns / glue ear delay?

6 replies

peaky297 · 20/08/2021 11:25

Apologies for the essay! I am looking for some advice or reassurance. My lovely 20 m/o DD is behind developmentally in relation to speech and communication. Walking / fine motor skills etc occurred when expected and are great. No obvious sensory issues - great eater and sleeper.

We noticed around two months ago that she seemed to be in a world of her own a lot of the time, didn't often respond to her name and wouldn't participate in puzzles or games despite encouragement. As a result, we had her ears checked and had a diagnosis of glue ear in both ears, so we know that she was likely hard of hearing for periods of time, possibly for months as she didn't show signs other than pulling at her ears which we had put down to teething / habit. The glue ear seems to be improving and whilst her hearing isn't perfect, it is now within normal ranges according to a recent test. She has shown definite improvement over the last few weeks as she now will look when you say her name (unless distracted), babbles a lot in her own language (she rarely babbled before) and has even repeated a couple of words. She also seems to understand more and will get specific toys from her toy basket when I ask for them (though this is when she feels like it - she will ignore me when she doesn't which I guess is normal toddler behaviour?).

My ongoing concerns are:

  • Will point to things she is interested in, but it doesn't seem that it is to show anyone else, it's like it's just for her
  • Rarely points to ask for something - will usually just look at it and cry until I give it to her, though she has pointed to ask once or twice recently.
  • Still no speech apart from the odd word that is copied as she needs to be prompted
  • Sometimes she will be looking at me and seems to zone out - if I move my head her eyes don't follow me so I know she has been in a "dolly day dream"
  • Can be hard to get her attention when out and about as she is too busy looking around at other things
  • overall she just seems to struggle to communicate - it seems that the understanding is often there, but she just can't reciprocate.

As you can imagine, my anxiety is sky high about it all and the not knowing is awful. The optimistic side of me thinks she is delayed as a result of the glue ear as not hearing well for a potentially long period of time is bound to have had an affect. The less optimistic side cannot ignore the red flags for autism and I inevitably worry about what that could mean for her future. We have an appointment for community paeds in a couple of weeks , but I'm not convinced I will have many answers from it.

Please can anyone offer any advice, experiences or even just some support as whilst I have mainly stayed as positive as possible through all of this as I will love her no matter what, I am really struggling this week with the uncertainty.

Thank you.

OP posts:
peaky297 · 20/08/2021 12:01

bump

OP posts:
ChilliHeeler82 · 20/08/2021 16:41

She sounds fine to me - the glue ear would really have affected her speech and understanding. She's pointing which is extremely positive.

ChilliHeeler82 · 20/08/2021 16:41

Also it's absolutely normal for it to be hard to get their attention when out and about! Everything else is more interesting.

KL92xxxx · 20/08/2021 19:43

It sounds like everything that could be classed as an issue is probably down to the delay the glue ears have caused. My little boy is 17mo and if he’s busy I have no chance of getting his attention! He knows his name but if he doesn’t want to respond to it he absolutely won’t. I know it’s hard fo rationalise anything when it’s about your own baby but I wouldn’t be concerned if I was you, she will probably come on in leaps and bounds as her hearing improves.

Adams0183 · 06/06/2023 12:56

Hi i just wondered if you had any updates as my daughter is in a similar position l?

peaky297 · 06/06/2023 13:04

@Adams0183 hi!
I'm really pleased to say that things have turned out well. She had surgery to fit grommets in both ears at just gone 2 years old and it was a game changer for her. Now she has caught up with her peers and definitely doesn't struggle to communicate anymore. She loves to play and is very bright and ready to start school in September.
For us, grommets were life changing so if you feel that it's the hearing that's holding her back then they may be worth looking into.

All the best! X

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