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Does my DD sounds like yours? Walking at 32 months and now possible language delay

9 replies

Rhubarblin · 23/05/2021 20:47

My DD turned 3 in April, so she's 3 years 1 month. She was a very late walker - 32 months (I've put this is months to be precise). It was thought in the end to be down to very hypermobile hips.

Her speech seemed about normal around 2, putting 2-3 words together like 'it's stuck' and 'just a baby'.

Since the start of the year I've been more concerned and I think she has an expressive language delay. She can answer things that are right in front of her like "What's that?" (Cat) "What noise does a cat make?" (Meow) She will say up to 5 words together now eg "Hey! What you doing here?" when she isn't expecting to see someone at home. She will say basic questions like "What's that noise?" "Where it gone?" and phrases like "take it off", "come on then" "let's go" - all in context.

Receptive language she generally understands what I'm asking her to do, where we're going, time for a bath, time for bed etc. for all familiar things.

She can read numbers 1-9 and generally know animals and everyday nouns (chair, toothbrush, tree etc) and verbs.

My concerns:

  • completely muddles up pronouns when referring to herself "We want" for "I want", "Help you" for "Help me". She occasionally uses "I" but it seems to be more "we/you" now.
  • No conversation flow, she can't answer questions about what she did at pre-school at all or anything else we have done. She knows her name and will say it throughout the day but very rarely answers "What's your name?" and "How old are you?". She doesn't answer anything like "How are you?" "Did you have fun?" "Who did you see today?" "What would you like to eat?"
  • Uses a lot of single words still to request things, so although will go max 5 words in a sentence, it's still "cheese?" (as in asking for the food) "more juice?" etc

She's just started pre-school and I did say when she started I feel her language is behind and she's under the Paediatrician for mainly the walking but they do look at overall development. When we saw them at the end of last year, I said a few things she could say but she wouldn't speak at all when there and they noted her speech as "developing" and didn't suggest any referrals around speech. I wasn't really concerned back then as she was 2.5 ish and also she does make constant progress, learning new words often everyday but now at 3 just seems behind.

I feel that she's been very focused on learning to walk so a lot of her energy has gone into gross motor and she hasn't had the experience that being mobile gives you i.e. she's always been in the buggy until recently. Covid has meant almost zero social interaction with other children and she responds to them so much better, hence starting at pre-school and we're doing lots of social activity.

The Paediatrician will review her in December and we have an open appointment for then (i.e. only if we feel she needs it) and I'm wondering if it would be best to wait until then as she could make good progress in 6 months now with lots of social interaction and just generally getting out more.

I had a look on the local NHS SALT website and they're on a very limited virtual service still with huge waiting lists, although you can self refer still but waiting a year almost seems pointless. I even looked at private SALT, there's a couple locally but they're all online still at the moment too.

I've googled about walking and language delay and it comes up with lots of info around autism, especially the reverse pronouns but she doesn't fit any of the sensory issues at all, she's always been very sociable and lots of eye contact, always waved, clapped, pointed etc. She does like to line things up and organise them but seems to be doing this less and less and does role play like looking after her dolly.

I'm just wondering if she sounds like anyone else's child and if they've been diagnosed with anything. When I look a speech targets, she often meets them all as she has a fair bit of language and does make short sentences but it's the no conversation flow and not answering questions that concerns me.

OP posts:
Rhubarblin · 23/05/2021 21:03

Also to add, she did have some quite bad "terrible twos" from 18 months onwards but seems to be coming out the other side of this now at 3.

She's very cuddly and (generally!) very happy and sweet, she's easy to take out and about. We only really ever have an issue if she can't have something she wants but gets over it much quicker now. She's not so keen on sharing but very limited practice with this!

OP posts:
Jay2790 · 24/05/2021 07:37

Definitely get some SLT support as they can advise you on strategies to try at home - speech and language therapy is often more about that.

NuffSaidSam · 24/05/2021 11:30

The website teachmetotalk.com has some great ideas/resources and is definitely worth a look. I think there is also a YouTube channel and a podcast.

There is no harm in going on the speech therapy waiting list, you can always cancel the appointment when it comes up.

I would hold off paying privately for now and see how she develops over the coming months. See what the pre-school think once she's more settled in.

Make sure TV/background noise is off when you're speaking to her. Do lots of modelling. Instead of asking her questions, model the answer. So instead of 'what did you do at preschool?' you can say 'while you were at preschool I went to Tesco. I wonder what you did at preschool. I think you did some painting'. She might join in with a more casual conversation rather than questions. Also, if she likes role play model speech here too. So ask the dolly 'what did you do at preschool today?' and then voice her reply 'I did some painting' etc.

Rhubarblin · 24/07/2021 21:38

Thank you for the advice. "Teach Me To Talk" have a really helpful video. I also got the book "It Takes Two To Talk".

She's on the waiting list for speech therapy and also a screening for autism (it's like a pre-screening before a proper assessment) but huge waiting times for both.

She's behind in gross motor, communication and social skills so meets the criteria for Global Developmental Delay. They felt she has some autistic traits. We ended up seeing the paediatrician early.

OP posts:
Bonjourlaclasse · 27/07/2021 21:17

Hi @Rhubarblin, your DD sounds very similar to my DS on the communication front. He was 3 in April and has similar language difficulties. He is delayed by at least 12 months I’d say and also his speech is very unclear. He can manage upto 5/6 word sentences (mainly orders/commands/ questions), gets pronouns mixed up and you can’t really have any kind of conversation with him. If I ask him what he did at nursery at the end of the day he just recites the names of the children at nursery. He also repeats the same lines over again, ‘what’s that noise’ he has said about 50 times today and gets obsessed with things like the green man on traffic lights so mutters about them a lot, iyswim.

He goes to nursery 4 days a week and we talked to them about our concerns last autumn. We were referred for nhs SALT but got fed up waiting so went privately in the new year. She has been brilliant and we are now seeing her once every 6 weeks. Nursery were concerned about the speech delay, his lack of concentration/focus, slightly obsessive behaviours etc. (he does a lot of running between the same points of the room at the same time every day apparently, which he also does at home) so they got an educational psychologist in to review him (all at their own impetus) and she has told me to refer him to a paediatrician via my GP. I’ve no idea how long that will take. They are also going to apply for inclusion funding for him - I was upset when they told me as they must think there’s a real issue as funding isn’t given out for no reason.

No one has given me any real indication of what they’re concerned about but presumably it’s autism related. The psychologist would only refer to social communication difficulties. It’s been a bit bewildering, tho of course great he’s been referred for this support. He is a very happy boy and friendly and loving, especially to his little sister, but he can be quite challenging. He appears to have a few sensory issues - for example he is very fussy about what he wears and at the moment will not wear shorts or short sleeved T-shirts, and only orange socks. And until recently would only wear wellies for nearly a year. His diet is also awful.

Im trying not to worry about what the future holds and instead focus on what he can do, tho admittedly It would be wonderful to be able to have a proper conversation with him. I am a little jealous of all the chats my friends have with their same aged children. Anyway, sorry for the long spiel, essentially I just wanted to say I can’t really offer any help/advice but I understand. Parenting can be a very lonely place!

Bonjourlaclasse · 27/07/2021 21:21

I meant to add, he crawled at 12 months and walked at 17 months so late but not super late.

Rhubarblin · 27/07/2021 22:01

Hi @Bonjourlaclasse

Wow, they are really similar and I can relate to so much of what you have written plus they are the same age.

The HV can also refer you to the paediatrician and they [paeds] will look at every area of development and oversee all the referrals...so physio for huge gross motor delay in our case (I think she was 18 months developmentally for gross motor) SALT, autism assessment, OT etc

They said her speech was around 24 months, so similar to where you feel your DS is at. The main reason for the autism referral was because she can be very rigid with certain behaviours, she organises things the same way each time and if someone touches it she screams. Although tantrums erupt over nothing they can be over in seconds, whereas when she was 2 they would go on a lot longer.

I can relate to the being really happy and lovely most of the time but then having certain things that set her off, like when something is 'wrong'.

I feel really uncertain what the future holds although she's constantly improving! It's really nice to chat to someone in the same boat. I will keep this thread updated with her progress.

OP posts:
Rhubarblin · 29/11/2022 20:26

I just wanted to add a short update to this as I've had a few people reach out after reading my threads. My DD is now 4 and has been diagnosed with autism. Her speech continues to develop and reading back on this thread from 18 months ago, I can see how much progress she has made.

OP posts:
PritiPatelsMaker · 30/11/2022 00:02

It's so lovely that she's making progress and thank you for the update Flowers

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