Sogs assessment

[Crechendo]

My LB had a sogs assessment today.

The HV said she wasn't able to complete it because his understanding wasn't where it needed to be. She said if she did complete it he would score low.

I completely agree that he's behind developmentally but am surprised that she couldn't even complete the assessment. I've looked into it more and the assessment is meant to be suitable from birth so how could he not have understood??

Does anyone have any experience of an assessment?

How old is he Chrechendo and did the HV say what would happen next?

I think there are several tests aimed at different ages, so the newborns would be tested in a different way

He's 16 months old. She did say that he would be referred to SALT and also something called portage. My concern is that we got referred to SALT earlier in the year and they discharged us after a ten minute call so I feel I'm going round in circles with no control.

Has she referred you to a Paediatrician too?

Portage can be really great. My son's portage worker really helped me to be find different ways to promote development. We also attended a portage group with other babies and toddlers with developmental delays which was helpful and it was good to connect with other parents facing similar challenges.

No, she's not. Would you recommend me asking for this? What would they do?

@dimples76, that's great to hear! I'm open to any sort of support that's on offer. O really like the idea of a support group. I'm feeling very alone and confused at the moment because noones actually told me if there is something underlying. There's just referrals. I'd much prefer someone to say we think he has XXX.

I'd much prefer someone to say we think he has XXX.

A Paediatrician should be able to do this for you

Crechendo I hope that you can access suitable support. As mentioned above the paediatrician would normally consider the causes of the delay as well as support. So for example my DS had a blood test for genetic testing. Nothing was identified by genetics which is quite common. We are supported by a charity called SWAN (Syndromes Without A Name). It can be very hard without a diagnosis, without much idea what lies ahead but my son's paediatrician always emphasised the importance of meeting his needs rather than just pursuing a diagnosis. In the past he has had support from SALT, physiotherapy, Portage and Occupational Therapy but they have all stopped as his development has progressed. He still has special needs and health issues but is generally a happy boy who keeps us all on our toes - he burst into my bedroom at 6am this morning to ask if Santa had been!