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Son being referred

12 replies

Hill1991 · 28/09/2020 22:48

My 28 month old son is currently being referred to a speech and behaviour specialist by our home talk worker due to the fact that he has a

speech delay
Doesn't really like anyone getting into his space when playing
Doesn't pretend play
Moves things from one place to another
Likes watching game shows (countdown mainly)
Disruptive sleep
But he has good eye contact
can count to 10
Does know all his alphabet
He's generally on track with everything else Development wise

I'm just wondering what are these assessments like or any advice on how to go from here as she just said that on our last session and not really gave me much as in information in what is going to happen next.

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BackforGood · 28/09/2020 23:35

It might help if you say which country, and what part of the Country you are in, as systems are different in different authorities within the UK, and probably again in different countries across the world
I don't recognise the name of your support nor where the referral might be to, but someone else might know more about the systems where you are.
Of course, you might prefer not to say, but each Health authority and each education authority have different ways of assessing needs I'm afraid. Smile

Hill1991 · 29/09/2020 00:15

BackforGood I'm in the uk and in Nottinghamshire

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pumpingRSI · 01/10/2020 01:51

Hi, I'm in Notts and have been 'through the system' so to speak.

We initially had some help from local children's centres and behaviour, but to be honest they suggested some things which helped and books to read, but weren't to do with getting him medically diagnosed. I've come to realise there were two different pathways, 1. To help behaviour, coping strategies, ways of managing in childcare settings (nursery, then school) and 2. Medically via paediatrician - getting a diagnosis, medication. We needed to pursue both. Usually if child in school, they can push for referral to paed but you can also go to go to start referral process. Whilst you don't need a paed / diagnosis - it takes a long old time so start early if you think there is an issue and it also helps us to learn to manage in diff ways and to stop our school excluding for disruptive behaviour and get help with additional funding.

I hope this helps, it complicated and a shame that no one really explains these pathways. Ask Us Notts were also really helpful esp if you needed or wanted to pursue a EHCP at some point in the future.

Hill1991 · 02/10/2020 23:20

@pumpingRSI thank you, the lady from home talk rang me and told me that's she's put the referral and will be in touch in 3months if I haven't heard anything.

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ambereeree · 11/10/2020 09:12

@Hill1991 what is his understanding like? Does he follow instructions?

Hill1991 · 13/10/2020 00:27

His understanding is ok and can follow instructions as long as he isn't in his own little world then he just ignores you (actually I don't think he hears us as you can wave you hand in front off his face and nothing no response what so ever)

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ambereeree · 13/10/2020 14:29

@Hill1991 my boy is the same and has ASD. Sometimes I don't know if he doesn't understand or is just being a toddler. I find he hears better if I link his name to something else ie. Jack bed or Jack Bath. It's like he doesn't acknowledge his name.

Hill1991 · 13/10/2020 20:02

@ambereeree my boy is the same it's like your not there if he is in his own little world even if you step in front off him he doesn't move or recognise that your there

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ambereeree · 13/10/2020 20:23

@Hill1991 I always liken it to having a little alien!

Hill1991 · 15/10/2020 19:59

@ambereeree he's finally got his audiologist appointment come through but it's a phone call don't know how much they are going to test a 2yo hearing through a phone Confused and it definitely is spent 20mins this morning to try and speak to him before he acknowledged me Grin

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ambereeree · 15/10/2020 20:22

@Hill1991 what about if you say Jack banana or Jack chocolate or something else he loves. Does he respond then?

Hill1991 · 15/10/2020 22:28

@ambereeree sometimes that can make a difference but other times it's just like nope don't wanna answer or acknowledge your existence, (the hearing definitely needs checking as he's got very overly waxy ears)

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