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Any advice please on my 3 year old

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Nikki2ol6 · 17/01/2020 18:57

My child is 3. He’s been poorly from birth and had open heart surgery multiple times from being 2 weeks old. He’s suffered from seizures and he’s also got sever hearing issues. He is non verbal and can’t walk far either. He’s not long turned 3, last year when he was 2 he began waking at all hours of the night and would start pulling the sheets off his cot mattress and pulling his mattress out of his cot and throwing it across the room then falling back asleep on his wooden latts. He did this all silently so I had no idea until the morning when I would go into his room. I had to put a zip cover on his mattress and put holes in this cover underneath and tie it to the latts. He then learned how to climb out of his cot and would open his bedroom door, I put a baby gate on his door but he would climb over that too. So Iv had to remove the door handle on the inside of his room so he can’t come out during the night when we are all asleep. Iv put him into a single bed, it’s a very low bed around 2ft off the floor all in all, he doesn’t like any sheets or quilts on it, all he wants is his fleece blanket he’s had from being a baby, so I make his bed and he just pulls it all off straight away. I just leave it until the morning and make it again. He’s been pulling off his wallpaper, and also pulled his tv over and broke that so Iv had to buy a new one and put it very high up on his wall and cover all of the wires and the plug. Iv had to put safety locks on his built in wardrobe, Iv had to put in a third sheet of window so that he has his normal outside window then a roller blind then another window which is a sliding window which I have to lock closed every night, he can’t have any curtains as he pulls them down too. Iv told my health visitor and she’s refered him to have some assessments done. I can’t take my eyes off him for a second unless he’s in his highchair. Or he’s asleep. He’s been on sleeping medicine before as once in the hospital he was keeping all the other baby’s awake so they had to put him on a sleeping hormone medicine. It worked for a while when he was on it but the dr said the more he takes it the harder it will be to come off it and he won’t be able to sleep on his own without it. He has climbed out of his car seat multiple times even though he’s fastened it correctly he found out how to push the button and would lean forward to loosen the straps I had to pull over on the motorway and he did it again 5 mins later. Iv since had to buy him a car seat where the straps tighten on the straps. He’s still in nappies full time and is nowhere near ready for toilet training. My health visitor told me to get him into a day nursery so I did and within 2 days they done assessments on him and told me he’s a danger to himself as he was climbing up the book shelf’s as if they were ladders and various other things so they have also made this referral to the same people my health visitor did so I hope he gets seen quicker. He also won’t look anyone in the eye and never smiles. He laughs at the tv when the ball bounces around on in the night garden, I feel bad as I should be enjoying my child but I’m finding it so stressful. Has anyone got any advice for me please or has anyone got children who do similar things?

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