I'm at breaking point and feel like such a shit mum right now.
DS got diagnosed with epilepsy around 6 weeks ago - came totally out the blue his first fit and he's been on medication for around 4.... (with one been added an then both been going up and up slowly) they've said to me it can have loads of different side effects Behaviour being one of them.
My DH says he's just a typical 3YO an it won't be his meds. But before any of this happened he was my angel baby. He was so well behaved went bed at 7, didn't act out like he does now and listed to what I asked and helped me with his DS - she's 2)
I don't know if it's because he got loads of attention whilst we was stuck in hospital for a few weeks I don't know now he's acting up on it. Or if it is because of his age or it's the medication or it's a mix of everything. I'm 7 months pregnant and once he goes to bed il sit and cry ?
I should be so great full these medications have stopped 30+ seziures a day to about 2/3 max a day.
He will now scream at everyone, hit and kick them, doesn't want to listen to anytningggg and will just run off (he's now back on reins, hasnt had these since he was 2?) or have a tantrum for no reason. he will walk along and throw everything off the shelves at playgroup or whilst out and find it funny, pushes his head against you as sort of butting and it really bloody hurts sometimes. Just all kinds he isn't the same child my mum was shocked when she FaceTimed him today an seen how he was.
Doesn't help as he isn't allowed back into school until they safe guard the room and have him a 1-1 until he is under control and his sister has just started without him witch he is aware of
I spoke to school and asked if they like let him attend but I have to stay - I don't mind and We have been doing it 3 days a week!
But when I take him to the park, playgroup 3x a week) soft play, the beach. You name it he just isn't happy and will always want to go home. Even with plydoh and paint out he isn't happy. I feel like I'm just not pleasing him at all?
He's really breaking me down i don't know what to do for the best anymore im sick of crying over feeling so useless as a mum to him ?. I feel like I'm the only one seeing it as I'm with him 24/7 DH works a lot an goes the gym so he doesn't see it.
Iv asked my consultant and specialist for advice and they've said their going to reduce the medicine that effects his behaviour as of next week (that means I upp the other meds from tonight ) as the other medication wasn't long term anyway it was until the long term medicine got to a high enough dosage to control the seziures then they reduce the background one.
I just want by boy back to how he was before this happened 😢