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Plagiocephaly and delays

15 replies

ninafromberlin · 23/02/2019 00:50

I just read an article that showed babies with plagiocephaly will have cognitive and motor delay, is this true in your experience?

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JiltedJohnsJulie · 23/02/2019 19:52

I've not had a baby with Flat Head Syndrome so probably not the best to answer your question.

If your baby has this, are they young enough to get it corrected?

ninafromberlin · 24/02/2019 09:31

My baby Is 12 weeks.

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ninafromberlin · 24/02/2019 09:32

It is quite pronounced but somewhat suddenly seems to have appeared

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JiltedJohnsJulie · 24/02/2019 10:56

At 12 weeks I'm sure it can be corrected. Have you seen your GP?

ninafromberlin · 24/02/2019 14:00

Not yet will book soon, only just noticed it.

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surreygirl1987 · 24/02/2019 20:04

My 4 month old son has plagiocephaly. So far he's way ahead in all his skills; his physiotherapist said this (he's being treated for torticollis). She also said thst plagiochephaly is a cosmetic issue only so don't worry. It is fixable as at that age their heads are growing quickly but you have to be quite conscientious about it.

BarbarianMum · 24/02/2019 20:37

When you say article do you mean an article linked to a specific piece of scientific research? If do, do you have them reference. Sounds extremely unlikely to me. Or rather, could it be a "correlation" like the not crawling and developmental delays "correlation"?

surreygirl1987 · 25/02/2019 07:20

The correlation thing is a good point - lots of babies with plagiocephaly have it because of torticillis, and tort DOES often cause developmental delays. But plagio ON ITS OWN with no other interfering factors, does not.

ninafromberlin · 26/02/2019 00:33

@surreygirl1987, when did you first notice the plagiocepahly? Where did you start in seeking treatment? Have you got a helmet? From looking at photos online my DD seems to already have quite a sever case, feeling like a rubbish mum Sad

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BarbarianMum · 26/02/2019 06:18

OP please dont worry. My son has a properly deformed skull (craniosynostosis). It was very noticable at 6mo, not noticable at all by 2 (hair helps).
The neurosurgeon we saw said that although the deformed/flattened areas of skull dont recover (unless broken/surgically repaired) they make up so little of the final percentage of the adult skull that they're not noticable as you get older. I mean, how often do you see an adult and think "goodness what a flat head" ? I don't think I ever have.

If the GP gives you the OK you can get a helmet of course, but Id advise you to save your money.

ninafromberlin · 26/02/2019 07:48

Thank you @barbarianmum, good point about the skull growing later. I have been worried a DD also seems to have one eye more forward than the other, this might also be cranio from what I understand, when and how did you notice on your DS and get care? We are from Germany, not needed to have much interaction with NHS beside pregnancy.

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BarbarianMum · 26/02/2019 08:17

Ds2's cranio was picked up by a doctor at 6 weeks and he was then referred onward for scans etc. It was only picked up so early because we were in hospital for something else though, it wasnt really v noticable til 3/4 months.

Im sure thst you probably know this but want to post it for anyone that comes across this thread later. Its really, really important to see a doctor and rule out craniosynostosis (premature fusion of the skull sutures) before choosing to treat plagiocephaly w a helmet. Wearing a helmet is incredibly dangerous for babies with craniosynostosis and can cause irreversible damage.

ninafromberlin · 26/02/2019 09:28

Thank you @barbarianmum, yes I will not but a helmet. Can a GP assess for this or do I need to seek a different person?

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BarbarianMum · 26/02/2019 10:11

A gp wont be able to confirm craniosynostosis but would refer you either directly for a cT scan or to a paediatrian if they suspect a problem. Probably the latter.

BarbarianMum · 26/02/2019 10:12

But yes in the UK everything is usually via the GP.

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