Daughter has just been put on Asd pathway.

[FREYASMUMMY2015]

Hi
My daughters behaviour over the past 12 months has been terrible like every tiny thing was a massive meltdown and even when we were out people would be looking at me like I was a terrible mum who couldn't control her child even in the school when she started hitting Nd kicking other kids and teachers. We have been waiting 6 months to see a peadiatrician and they have put her on the autistic spectrum disorder pathway as he said he was certain by observing her and the reports and what I had to say that she is autistic and sent us on our way but he said we have to wait a year for somone to be in touch to observe her again. Am just at a loss am a single mum and its just me and my Little one I don't know what am supposed to do now or were to go. Has anyone had any experience with this or have any advice it would be greatly appreciated.

Thank you.

Hi, sorry to hear you're struggling.

I've nothing no experience of ASD but it would help posters to know how old your daughter is?

Hi shes nearly 4 x

There is a special needs section of the board that’s really helpful. There are things like salt and portage and local offers that the people there can advise you on :)

I’m sorry you are struggling and I hope you get some support. Your HV or local sure start centre will probably have details of parent groups for sen children. Also maybe try googling your local area + autism as there are lots of local charities and support groups about x

Thanks I have searched but their dosnt seem to be any near me all over the other side of the city. I will get in touch with my local sure start in morning. Thank you.

Hi OP - my DS is autistic and was diagnosed last year. I know it feels daunting at the moment, but you are over the first hurdle and now you can start to get the right support in place for your DD. Have you had any access to SALT, Early Support/Specialist Teachers yet? In my county once you are on the ASD pathway this is available. Have a look at your Local Offer, this should give you a better idea for your area. It can be hard to advise as they vary so much.

It might be an idea as well to meet with preschool/nursery to review the support they have in place, particularly if you have any concerns. Am I right in thinking that DD will start school in September? Once you know the school, you can request a meeting with the SENCO to discuss transition and the support that will be provided. You may find the Early Support Team help with this, they do in my area.

Another thing to consider would be applying for DLA. It is awarded based on needs. These have to be greater than those of a child the same age who doesn't have a disability and it isn't based on diagnosis, so you don't need to wait to apply. The form is very hard going, but it is worth it. I don't think we realise how much extra care we provide, as it just becomes the norm. I wasn't convinced DS would be awarded it at all, but we ended up with mid-rate care. Have a look at the Cerebra DLA Guide www.cerebra.org.uk/tag/dla-guide/.

Do head over to the SN board as well. There are lots of really knowledgeable posters there.

Thank you my little one is starting reception in September yes and she is currently in the nursery t the school she will be going to. I am. Going to Speke to the school today and see what can be done I don't want my little one to be singles out Nd that's one of my big fears. I will deffo look at Dla it's just so daunting as I am on my own with her and I don't know how to manage this. Xxx