Chronic constipation in 9 yr old- advice pls!

[fuzzersmum]

DC had constipation issues since toddler. Been on & off lactulose & movicol. Tested when 4, dairy intolerant but then advised just needed more water.
This episode not had poo for 4 weeks & been off school for 3rd week. Usual lactulose & movicol didn’t work, movicol causing stomach pains. GP prescribed senna but this just increased leakage, up 10 times a night, dc more lethargic, drinking & eating less. Returned to gp (different), prescribed suppository which dc found painful (screamed when I gave it).Then gp prescribed enema. Didn’t work so prescribed another 3 days later, no joy.
When dc woke 4 days later with pain when pee, unable to pee but needed & continuing leakage took to a&e. Urine infection diagnosed, Trimethoprim & Picosulphate prescribed for 3 days. Returned when no poo. Saw different doc who gave us more movicol & told to increase up to 12 sachets. Refused as dc unable to consume enough liquid now, told next step is nagostric tube to give movicol. Agreed combination of lactulose & Picosulphate for 10mg each twice day, but only increasing leakage.
DC finding relief sitting in shower for hour+ and now trying to pull out bits poo. This has enabled dc to eat & drink bit more for energy. Bottom is v sore & struggling with continuing leakage.
GP (different) call yesterday was v difficult, GP agreed to refer to gastroenterologist but admitted issuing letter alone will take days (grrrr).
At wits end, dc & I exhausted. Can someone pls offer advice? I’ve read about sedated removal but never been offered.

I'm assuming he's too blocked for a suppository to work?

Swimming nappy in the bath might make things easier too.

It sounds like he's at the point he needs an enema at the hospital and nothing else will be of much use.

We tried a suppository at home & it didn’t work, dc found it painful 😣 the enemas had some relief & in the bath after there was some release but nothing major at all. I think there’s a blockage somewhere, not sure if I can ask for a scan or sedated enema in hospital. We’re back there on Fri.

That sounds awful! There is a syndrome called hirschspring I think where the bowel doesn't move in the normal way to aid defacation. Is it possible she had that? Must be difficult when she's in do much pain but can she keep mobile as exercise will help

Thanks for your messages. We ended up in A&E with dc who by this point had been up for 3 hours during night with constant diarrhoea type leakage and stomach pains. DC was admitted to ward, ultrasound scan & Klean-Prep given, which I understand is given to clean bowels out prior to operations - it did the job! Frustrated dc had to endure so much pain before being treated seriously. Have been instructed to carry on with maintenance programme of lactulose & movicol. Home for Xmas tho yay

Thank goodness DC has had some relief