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Umbrella pathway autism assessment process/bereavement

3 replies

britespark1 · 17/10/2018 10:40

Last year my middle DS (now aged 6) was referred by school (on the advice of the Educational Psychologist) to the Umbrella Pathway which is basically the assessment process for autism and similar conditions. Naturally it is a long-winded process and he has so far only seen a clinical psychologist. The next step is an appointment with the community paediatrician team and after that the professionals involved will reconvene and discuss his case. We have been told now that instead of aug/sept for this next appointment it is likely to be jan/feb.

Although academically very capable, his behaviour at school is very up and down largely stemming from his inability to regulate his emotions eg cannot calm back down once upset. He is also very fixated on the death of his great-grandmother 2 years ago. Obviously he would have been very little when this happened and we have always allowed him to talk about her freely, given him photos of her etc, but any mention of anything related to death affects him greatly.

Does anyone a) have any advice re dealing with bereavement in young children, especially if it is not a recent issue and b) have any experience of going down the private route for autism assessment in the hope of a quicker process?

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MumUnderTheMoon · 17/10/2018 22:44

This may sound odd but as far as the bereavement issue goes; two years seems like a very long time for such a young child to grieve. Is he prone to repetitive behaviours in other areas? Is it possible that he has just become fixated on talking about this over and over again. Are the conversations the same each time? My daughter communicates almost exclusively this way. There are just certain things she is compelled to talk about. When it has happened more than 2/3 times in a day I just say. We have talked about that a couple of times today love and we're done now. Maybe try this with your son if it's just a ritual he has gotten into maybe he'll accept this?

britespark1 · 18/10/2018 13:07

It could be a sort of habit or ritual yes. We have noticed that if he gets upset about anything, it seems to lead back to talking about his Nanny, even if unconnected. I had some good news though yesterday and school are bringing in a specialist to do some work with him to try and get past the issue. It is normally for children with autism or similar conditions and although we don't have any diagnosis as yet, I definitely think anything that helps is worth a try.

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britespark1 · 18/10/2018 13:08

And sorry, I never answered the question, no he doesn't show any other repetitive behaviours.

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