Congenital hypothyroidism

[firsttimemummy17]

My DD has been diagnosed with CH at 1 week old, although only borderline, and been put on 25 mg Thyroxin since she was 4 weeks. Her blood tests are perfect now and her dose has not been increased since then, she is now just over 5 months. It has been no trouble giving it to her, I am crusing the tablet and giving it on a spoon with her morning feed, either bottle or putting her straight on the breast. However, I cannot help but worry about her development and the fact that she is dependent on this medication, potentially for the rest of her life.
Mums who are going through the same and have older children now, would you be kind to share your stories about how your DC got on in terms of mental and physical development?

I don't have experience to answer your question I'm afraid. But I'm hypothyroid and my gp said that there are no long term risks with the medication if it is kept at the right level for me, as it is just a synthetic hormone replacing what your body can't make. I do feel gps can be under informed about thyroid issues. Do you have the condition yourself, can it be inherited?

Thank you for your answer. 18 years ago I had an operation to remove a nodule which meant half of my thyroid was removed and so I was slightly hypo. But I wasn't on medication until I was half way through my pregnancy. It didn't really impact my life as I was already an adult, but just wondering if it's different for babies considering their bodies and brains are still developing