Further update.
After the failed development test by the health visitor, who also mentioned her mis-shaped head, they referred her to my doctor for a further opinion. She said that she didn't feel anything was wrong, but they would refer her to the hospital for further tests, just to put our mind at ease.
We had an appointment at the local hospital which will be two weeks ago tomorrow. The doctor there asked what I was there for (I thought she would have known - failed 8 month development check) but I decided to start from the beginning. I mentioned her mis-shaped head (although it can't be that bad because the doctor didn't even notice it, only after I mentioned it) and also mentioned her failed 8 month development check.
They didn't seem that interested in her failed development test - just got to go back on 2nd October (she will be 1 on 24th October) to see if she is sitting up by then (she has in fact started sitting unpropped very steadily for about the last 10 days or so).
The one thing the doctor did seem to pick up on though, after I mentioned it, was her head shape. They sent her for a spine x-ray and two skull x-rays. I felt so sorry for Sasha (my baby) and absolutely heart-broken. They had to strip her off, lay her down on a sheet of glass and then strap down her arms and legs to stop her moving. They then placed some leaded bean bags on her legs to stop her moving. They took two x-rays of her skull and one of her spine. They said that they wouldn't get the films back that day but that they would ring me with the results.
Last Wednesday, one week after the x-rays, because I hadn't heard anything, I decided to ring. Trying to actually speak to someone was impossible. I left countless messages, tried again on Thursday and again on Friday. They gave me the doctor's secretary's direct line but again I couldn't make contact. When I got referred back to the children's main receptionist, she mentioned that the doctor had asked for Sasha's notes and that she would mention to the doctor that I had phoned yet again, and she would get the doctor to call me on Monday.
Anyway, Friday afternoon at 2 pm my health visitor, Louise, knocked on my door. I felt a bit worried as it is only in unusual cases that a doctor/health visitor would make a home visit.
She said that the hospital had contacted her and that Sasha's spine x-ray was fine but there was a problem with her skul x-ray and they want to refer her urgently for a CT scan to check brain activity and to make sure there is no pressure in her brain. When I asked what was wrong, the health visitor didn't seem sure, just said that was a slight problem.
Anyway, I tried phoning the hospital again on Monday to no avail, but, yesterday, the doctor's receptionist rang me.
She said she had a letter on her computer that was on its way out to me and she read it out to me.
It basically said that the spine x-rays were fine but the skull x-rays could not rule out the possiblity of synostosis. I asked what this meant, and she had to look it up in a medical dictionary.
She basically said that, when a baby is born, the plates in the head move so they can be born vaginally (as Sasha was). Over time, these plates then move flat but sometimes there is an over-lap or a gap when the plates move and this is synostosis.
They are referring her urgently (although I haven't heard yet!) for a CT scan to check her brain activity and pressure on her brain.
I am beside myself with worry :-
(1) Me and husband are separated although living in the same house.
(2) I am due to go to Spain on Monday for two weeks with my two eldest children, leaving Sasha at home, with two other girl friends and their 6 children between then.
When I mentioned to the hospital doctor's receptionist about this, she said basically that because Sasha has been like this for 10 months (since she was born basically) another two weeks isn't going to make much difference and, even if they find something not quite right (I cannot say "wrong", they will not do anything straight away as the time scale involved when I am in Spain is so short and she has been like this for 10 months and another 2 weeks isn't going to make much difference.
For those of you who don't know ... me and my husband separated (his choice) when Sasha was 11 weeks old and I have 3 children although he is still living with me.
My mum has had a nervous breakdown (and I don't say that lightly) which stems back from when my dad died just over 2 years ago.
The reason I am going on holiday and not taking Sasha is because:-
(1) I desperately need a holiday for my own sanity.
(2) It will be far too hot for Sasha.
(3) Both my other two are excellent swimmers and it will be a relaxing time for me to recharge my batteries as I can just sit on the side of the pool keeping an eye on them, rather than having to try and entertain them.
(4) The children that are going are boy (13), girl (12), my girl (9), twin boys (7) and two boys (one of mine) and one girl of 5 and, because they are all the same sort of ages, they all get on (best friends at school, etc.). Me with a 10 month old baby would not be much of a holiday.
I will miss her to bits but it will do ME a world of good to have a holiday and she is too young to remember - next year I am already thinking about holidays and she is coming with me DEFINITELY.
I suppose the reason I am on here today is to see if anyone else has come across SYNOSTOSIS, and if, so, after the brain scan, what was the outcome.
All messages welcome.