Can't cope with my 10 month old anymore

[Catsarefluffy]

Hi long story and I struggle with writing so good luck reading!
My ds has had breathing problems since birth it toke a lot of fighting including doctors thinking I was mentally unwell to finally get some answers he's got laryngomalacia with a laryngeal cleft and reflux with all bring lots of meds and hospital admissions last wk he was rushed to hospital as he stopped breathing. He screams all the time and hardly sleeps I haven't had a full night sleep since he was born. Weaning is a mess to put it lighty He's can't have anything unless is water thin puree and even then he sometimes chokes in that. I've now left three messages for his ent doctor to call me as he's getting worce but heard nothing yet (the first one was beginning of dec) I am not copeing none of my family care and tbh I can't do this for much longer. I need help.

That sounds a really hard situation to cope with. You must be so worn out!

Have you told your family you need help?

I've asked family for help

That's good, have they come through yet?

You must be exhausted. Do you have a partner to help you or are you in your own?

What have the doctors advised about weaning?

Have you googled to find if there are other parents of children with the same condition you could perhaps meet up with?

I would go to my GP, explain that you have been desperately trying to contact the specialist and have received no reply/help. They will hopefully try on your behalf, this isn't a waste of their time as it can be life threatening and needs someone to help you take action. A lack of sleep will absolutely make you feel like you can't cope and as your family are currently unwilling to help that will make it x100. You are doing an amazing job and you will get through this. You are clearly a very strong woman, you've proven this with your battles to get help, don't be afraid to ask for more as you've shown you know what you're talking about. Have a good cry if you need to, always helps me in hard times, then do what you must to forge a path forward. Good luck and thoughts are with you x

These two websites might provide some support, if you haven't already tried them:

community.babycentre.co.uk/groups/a3867305/laryngomalacia_support.

www.copingwithlm.org

You sound like you are fighting hard to get the best for your DS. Good luck and I hope you both find the support you deserve.