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Behaviour/development

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does my son have asd or ADHD

41 replies

GeorgiaT2468 · 13/11/2015 15:50

Hi there, in just wondering if anyone can relate to me at all. My 5.5 year old son has presented many behaviours since just past his first birthday. It started off with what I thought was the terrible two's with his temper tantrums and not listening to me ect. I wouldn't say I was strict on him because he was only little when it started and many people would acknowledge he was a handful but also that its usual and he's only little ect. As times gone on Iv attempted to put boundaries in place, consequences and used the naughty step, calm talking and reward charts. When I talk to him he appears to listen but as soon as we are done talking and Iv explained what consequence he will have if he does it again within 5 minutes he's doing the same again. Iv explained the rules of the naughty/thinking step that he must sit quietly for 5 minutes, he must not come off or scream at me or throw things near him but whilst on the step he repeatedly does these things, resulting him being on there longer. I'm very calm and I think im in control but he pushes buttons I didn't realise I had and I end up cross and upset and like I can't manage the behaviour. It doesn't matter how many times I tell him the step rules it's like he forgets and constantly questions how long do I need to be on here, I want to come off, mum, mummy. Ect, I always explain but it doesn't seem to go in. His behaviour at times is out of control and he gets so angry if something doesn't work or if he can't have something. It's not in a spoilt way he really appears so distressed and almost fearful if somethings not working. He doesn't like to go to bed or be in any darkness at all, he's terrified and will protest so much with crying and begging me not to send him to bed, even with a story, night light and cuddles which he has every night, in the end I give up and lay in bed with him comforting him. Many times I fall asleep too and in the morning I'm rushed off my feet before school doing jobs I couldn't get done the night before. He often wakes in the night or like 5am to get up, he's wide awake and his mind is running wild, I try to get him back to sleep but it's impossible, he's then so tired and tearful. He appears like he can't accept rules, I can tell him something 100 times and when I ask him to repeat what Iv said he cries and says he doesn't know it or can't remember. Lately at school he's been getting in trouble with being loud, interrupting others and shouting out in lesson despite his teacher pulling him aside to explain acceptable behaviours, he has behavioural charts at school but for him it's almost impossible to follow even though Iv enforced the same thing at home and it's full of great rewards that he's is so excited to receive. Yet he doesn't follow the rules and never gets rewards, when he doesn't get them he's so upset and remorseful of his behaviour. Just recently we had a discussion about making sure he wipes his bottom properly after the loo and washing his hands afterwards. I explained reasons why we must all so this and explained about germs and unhealthy things that can come from being unclean. I may have made a mistake here because now he is obsessed with washing his hands and using the toilet. He wakes during the night and instantly panics and says in a fearful voice mummy I need the toilet and to wash my hands. Every 5 minutes he's in the bathroom and if I try and distract him and stop him doing this so frequently he is terrified and cries and runs to the bathroom to do it. It was a simple lesson in hygiene but it's escalated out of control. He makes friends and keeps them I fact he's very popular among his peers but also quite particular about his role in playing games, he has to do things his way and sharing can be somewhat a problem. If he gets a bit of water on his clothes he panics and has to change it rather than allowing the drop to dry. He goes into school very well and is quite confident but when I leave to go to work he sobs and begs me to stay, same if I manage to stay awake after cuddling him in his bed and i get out to do jobs, if he wakes up he runs out after me. Sometimes he can't finish a meal on his own and cries and protests if I ask him to eat more, but if I feed him he will eat until his hearts content. When doing homework if he gets a word wrong in his reading book and I explain he nearly got it right but to try again he gets so angry and screams he can't do it. No matter what I try most days are a struggle, the school and myself can't seem to find a solution and I'm really worried about him Sad he's such a loving, polite, caring, sweet child and always wants to please me bless him but although he tries so hard he can't keep things up like being calm, a quiet voice or accepting what a grown up says. He's very easily distracted and can't keep still most of the time. It's quite stressful when we go out for family days and fun because he is stressed or angry about something or obsessed with just doing a certain thing. Is this normal for his age or do I need to speak to someone about it? There's lots more to add to this and possibly an incident to add which I feel could have caused further anxiety. But without mentioning that right now I was wondering if anyone could help advise me or have an input? I'm so very tired, Iv got other children too and juggling it all is exhausting and I just want to make sure I'm doing right by my children, they are my world, my heart and sole! I feel like I'm failing them because I just do not know where to turn. Thanks for reading xx

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mummytime · 13/11/2015 17:39

My DD (daughter) was diagnosed via the Doctor! Schools are often not qualified and reluctant to spend their money.

You need to ask for a referral to a Paediatrician.

Branleuse · 13/11/2015 17:43

oh ok, thats what my doctor told me when dealing with my eldest son, and it was all through the specialist HV when we went through it with my other son.

Now we are having issues with my dd, and the school are referring to the paed. I havent even been to the doctor about it. Not sure how a GP would even know, compared to someone that actually works with children with SEN.

Maybe its different in other areas, but my gp just told me to go back to the school

Fairylea · 13/11/2015 17:44

My ds has autism and is 3.5 years old. We started the process through the gp who referred us to the community paediatrician. Definitely go to the gp with your concerns, it can take a long time for a diagnosis so if there are concerns it's best to get into the system as early as possible.

Branleuse · 13/11/2015 17:44

saying that, my childrens school is very supportive and have great and knowledgable staff

PolterGoose · 13/11/2015 17:47

This reply has been deleted

Message withdrawn at poster's request.

Branleuse · 13/11/2015 17:54

definitely! I know how lucky I and my children are. Its just a mainstream town centre state school, but its got a real local reputation for being great with SEN. I love it, and Ive heard some real bloody horror stories with other schools being obstructive and unsupportive.
Its already enough of a battle without school being against you too.

GeorgiaT2468 · 13/11/2015 18:06

Thank you for the support. I just came to a halt when speaking to the school and felt stupid when they brushed it off. But I'm concerned and can't keep crying my way through it. When I see him struggle with things it breaks me. I forgot to add that when my son is in an assembly or something that requires him to sit still and be quiet he is given a sensory object like a little ball that he has to keep still or concentrate on. Or he is accompanied on the floor right next to his teacher. He feels different to others and in ways it's noticeable. I don't want him to feel that way. I wish I could explain in words how disappointed in himself he is and remorseful when he's done something he shouldn't. He tries so hard til he's blue in the face but can't manage a task such as quiet voice or sit still or don't do that.. I can see how impulsive he is and he just can't control it. I'm scared to involve people at his school when they don't see what I see or brush off what I say. It's not a great rapport and I feel a bit unsupported. Thanks for saying poltergoose that it takes guts, I was shaking and crying talking to them about it and felt quite vulnerable like us was me vs all of them. I would feel much more comfortable going to my own doctor who's known me and my children since we were born. My son has had issues I feel from early in age but I feel sick to say that when he was 2.5 his biological dad and dads partner physically abused him whilst in their care on weekend contact. My son was punched in the chest and to this day still mentions it and can tell me the story as clear as he did back then using the same words and facial expressions. I'm wondering if this has had an affect on him also. I know he can be a handful but nothing warrants harming a child of any age. My children are not physically chastised because it's strictly not my belief however my son still expresses fear when he's done something wrong and questions his consequence. This kills me!! I then can't continue the consequence as such because I just want to hold him and assure him he's safe! He's my baby and u just want him to enjoy being a loved and happy little boy Sad sorry to go on. Part of the reason I'm scared to seek help is also because I don't want to re-new history for him and at the time it happened I had a nervous breakdown as a result. It's a nightmare subject and even now I'm crying and shaking and I'm scared of it, God knows how my boy feels inside. Xx

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Babbafish · 13/11/2015 18:12

Google the Triad of impairments and see if he fits the criteria.... If he does arrange s GP appointment xxx

AngelSparks · 13/11/2015 18:13

my DS started the diagnosis via my GP

GeorgiaT2468 · 13/11/2015 18:14

Also can u ask if anyone else experienced a comment like this; another parents at the school has a son who's very fidgety and sweats constantly because he can't sit still. They advised her that sensory circuit would be benefits for him to for that reason and also asked her if she noticed that he has enlarged pupils? Apparently this is an indication that he could have a hyperactive disorder? Enlarged pupils is a sign is it? Hmm xx

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Branleuse · 13/11/2015 18:18

youve got lots going on havent you (((hugs)))

It sounds like the school are doing bits and bobs with him here and there to allow him to participate, so they are aware. Im sorry for what You and your son have been through with your ex. That cant have been good for an already anxious child x

Branleuse · 13/11/2015 18:20

I think going by what others have said that im possibly wrong about the GP being able to help, it would definitly be worth going, but I think you need to ask for some support for yourself too. Maybe a family support worker x

GeorgiaT2468 · 13/11/2015 18:47

I have my own therapist and own self soothing strategies I use. My children gives me strength to keep going. I'm just worried for my son. If I can just help him a bit more and settle his anxieties, things will be much better for all of us. I break down when he's not right. I'm so angry that what happened to my son happened. I'm full of rage and hurt. I blame myself for putting my trust in them and so many people say it's not my fault but I can't help feeling like if I didn't send him it wouldn't have happened Sad xx

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PolterGoose · 13/11/2015 18:48

This reply has been deleted

Message withdrawn at poster's request.

GeorgiaT2468 · 13/11/2015 18:50

I can't do a family worker I don't think. I asked for support after the incident happened and u had a woman visit my home. I asked because I didn't know how to deal with an abused toddler and I wanted to make sure I was doing and saying all the right things ect.. However Iv never felt so intruded on and powerless in my life. She dictated to me and I wasn't comfortable in my own home. In the end I asked her to leave and I managed things better myself. She was to much and none of her strategies helped, it distressed my son more and he was worse when she was there. Xx

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GeorgiaT2468 · 13/11/2015 18:54

Thank you poltergoose. Thank you so much. I just wish I didn't trust them. But I wanted to do what was right for my son and even though his dad and I separated before he was born I didn't want my son to be the one punished for it so I arranged contact and although my son wasn't keen on going I encouraged him to for the sake of a positive frequent father and son relationship. I hate guilt. Sad I'm trying to move forward its just very hard xx

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