Thank you for everyone's help, advice and kind words. 
Our local and specialist centres have pushed and pushed CAMHS but have come up again a wall. They simply don't have the funding or specialist services that they say DS needs. I think the last referral was number 6 from the specialist centre and we got the rejection letter last week.
We cannot afford to pay anyone else to come in and do his physio daily, even with DLA.
When he complies it's a 20 minute routine of pills, nebs, physio and then a final neb.
When he doesn't (99% if the time) it's a few hours, in the morning before school it makes for a very unhappy atmosphere.
I've tried everything from reward charts to tough love.
We are incredibly lucky to have a local charity that ties in with the hospital and the social services and they do everything the social services can in regards to financial help, support workers which we have and they are also giving me counselling at the moment for as long as I need/want it.
The school again a re limited in what they will/can do, they have a care plan in place for him so he can take his Creon with lunch and they can facilitate him in school on whatever hours he needs whilst he's an inpatient having iv's, but again he's ok at school, it's just us that he has this problem with.
The problem is his comprehension, we've all sat and told him about cf, shown him the child targeted videos and spoken about the different aspects, he chats away happily but then if you ask him later the same day what cf is and why he needs to take his meds and do his physio, he'll plead ignorance.
Hospital isn't an issue for him, he loves it there! He's like a local celeb when he walks through the doors, there is a great play team and he has his own room, computers to play, food of his choice and most importantly, Mum all to himself for 2 weeks.
Even if I give him choices he won't comply, I'll say "what do you want to do for physio this morning?" He'll say jumping then pep, so we go out to the trampoline and he will stand on it, moving up and down on hone surface of it but not actually jumping so it has no effect, if pushed to actually make his get leave the trampoline and jump he starts with the tears claiming he can't.
If he does his pep he will do a half hearted puff through it and then a weak cough, clearing nothing from his chest and so the arguments start.
It's frustration more than anything that something so quick and simple is causing so much trouble.
No reply from exp, and tbh I don't trust him to do the medication while DS is with him, it's one of the reasons we split up, he won't have him more than a night when he's free and even then he brings him home early stating that he's been hard work and he won't be having him for a week or 2.
Our team at the hospital really are great, they do everything they can but like me, they can't force DS to do anything, we can't manhandle him into doing it without hurting him.
I will talk to everyone again tomorrow and highlight how much it's effecting everyone but I don't hold out much hope of there being anything else that can be done that isn't already being done.
I'm going to try and sleep, I'm exhausted. Thankyou all again