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Infantile seizures?

8 replies

jilted · 08/06/2014 14:30

Does anyone have any experience?

Ds is 7 months old. He is a big lad for his age but at 4 weeks he got severe bronchiolitis. He had hypoglycaemia, hypothermic and cyanosed.
I thought we had lost him when we got to A and E. His sats were ridiculously low. He was transferred immediately to Kings in London and was in ICU for 10 days on a ventilator.

Anyway, he recover really well after and he seemed fine, but a few weeks ago I noticed when sitting in h's bumble he could not keep his head up for long. I noticed he kept jerking it from side to side. I thought he was just tired and took him out. He can now sit unaided for about a minute but he has been very uncomfortable the last few weeks too.
When holding him, he won't sit still and keeps thrusting his back and head back. Sometimes forward. He won't sit upright in his highchair but just keeps slumping back. The same if I put him in a chair or on the sofa ect.
Then he flings his arms and legs about and cries. He just never seems comfortable.
He seems most at ease laid flat on the floor.

I know much f this is normal (I have a 5 and 3 year old too) but I'm a bit worried about his constant movements and not being able to sit or sit still when being held.

I was wondering if anyone could relate to this and if I should be worried or not?

OP posts:
Swanhildapirouetting · 08/06/2014 15:11

jilted infantile spasms are quite dangerous, so you need to get seen as soon as possible. Have you tried posting in children's health as well?

It is very important to try and get the spasms under control if that is what they are.

I was waiting for someone else to answer with more experience, but as no-one has, I just thought (from my very limited knowledge of a neighbour's baby) you should seek RL 2nd opinion straight away.

jilted · 08/06/2014 16:26

Thank you swan. I was looking at YouTube clips of it and it just seemed to be what was happening. I'll book an appointment tomorrow.

OP posts:
ktef · 08/06/2014 20:26

Hi, no personal experience of this but through a support group I am part of I know of a parent who has experienced this. I would suggest you try and video it so you can show what you mean. I saw a video of the child doing just what you describe and it really helped the parent get across to the dr. Just out of interest was his hypoglycemia resolved quickly when he was ill?

jilted · 09/06/2014 08:11

Ktef, I'm not sure. They think he passed out while waiting in a and e and he had been very sleepy etc for a while before.
They rushed him in and sent him swiftly off to kings on an ambulance from our local. I'm not sure of the details (I was in such a state) but The discharge summary says he was cyanosed,hyperthernmic and hypoglycaemic. He was incubated, had bolus dextrose at our local before being transferred.

OP posts:
jilted · 09/06/2014 08:12

Sorry, in tubated !

OP posts:
ktef · 09/06/2014 19:48

Oh ok, I should explain that my ds has a very rare illness connected to blood sugar levels and so I am slightly (very) biased towards worrying about blood sugar!

ktef · 09/06/2014 20:09

Oh ok, I should explain that my ds has a very rare illness connected to blood sugar levels and so I am slightly (very) biased towards worrying about blood sugar!

ktef · 09/06/2014 20:10

Sorry for double post!

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