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Sensory processing disorder what to do next?

4 replies

Nousernameforme · 29/04/2014 11:55

On another thread this morning someone mentioned about their child always mouthing things, a few posts down spd was mentioned as the mouthing thing is something I worry about with one of my ds I did some reading on it. As it turns out my ds does have a lot of both the hypersensitive and hypo sensitive symptoms.

Touch seems to be a hypo one everything has to go in his mouth (ds will be 7 at the end of May) even up to a year ago he would wee on his fingers and put them in his mouth. If he has nothing in his hands then he will suck on his fingers he does dribble on them quite a bit doesn't really seem to realise he is doing it.

Sound wise he really doesn't like loud noises will run out of public loos if the hand dryer goes on. Hands are over the ears if a noisy motorbike goes past anything with a siren and it's hands over ears and hiding behind one of us. Hoover is also a no go

He is also an incredibly picky eater can't eat wet food it has to be dry no sauces ,school is a problem because of the noise levels and he gets frustrated very easily resulting in him losing his temper. He fidgets constantly cannot sit still. He also has some hyper mobility in his joints. He had speech therapy for speech delay we used to just spend the sessions in the loo running the taps with his hands in the stream of water he still does this now sometimes until we catch him at it. He still doesn't talk much preferring to tap people and point.

Now I come to write all this down I am thinking why on earth did I not seek help for him before

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Nousernameforme · 29/04/2014 12:00

Sorry not sure what happened there

This is the first times have really written everything down and it all seems to add up we have always known there was something up have looked into dyspraxia and aspergers before but he doesn't fit those. Sometimes I think it is just how he is and we should get on with it but it would be helpful to find out why things are difficult for him and what we can do to help if there was a diagnoses we would know what sort of things we could access for him. My question is where do I go from here is it gp or school or both what do I need to say in order to get him checked for this?

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Tambaboy · 29/04/2014 13:40

Hi, I would recommend you read " The Out of Synch Child" by Carol Kranowitz as it explains very well sensory processing disorder and has examples of activities your DS can do to help him cope.

"the Out of Synch Child Has Fun" is very good too.

This website gives you advice on how to seek referral. I would write a diary with his behaviours and triggers.

www.sensoryintegration.org.uk/about-sensory-processing-disorder

My DS (7) is very similar to yours. He has a dx of ASD and has hypermobility but SPD doesn't have to present with ASD, it can also be a standalone diagnosis.

PolterGoose · 29/04/2014 20:47

This reply has been deleted

Message withdrawn at poster's request.

Nousernameforme · 30/04/2014 23:48

Thank you for,replying. Apparently I can self refer to Camhs in this health authority, which I thought was a bit strange but I am going to phone them tomorrow and if they say they need a proper referral I will make an appointment will gp, and let school know I have done it therefore all bases will be covered. I have to see health visitor tomorrow with my youngest at the local children's centre so I am also going to ask if there are any things they think might be useful.
I have been looking through a "checklist" and it's weird how many boxes he ticks.
A lot of them could apply to any child but it's the amount of things that apply to ds and then there's the fact that this could even explain his fast heartbeat. I'm torn between elation that we might finally have an answer to why he is different and not fear exactly more worry iyswim that I can no longer go head in the sand oh he will grow out of it

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