Before you misundedstand I love my daughter for everything she is. I'm searching for answers to be at peace knowing I'm giving her the best care, the best schools, and that she isn't missing out on something she could benefit from
My daughter is 29 months old now.
When she was younger she spoke in sentences and was very vocal. But around 18 months she started these trances and become distracted and less volcal. At first i wasnt concern but after weeks of this it just became worst, so around 20 months I took her to her pediatrician and he was immediately concerned. He tested her for a long list of metabolic disorders, she had an MRI, an EEG, her hearing, her sight, it all cam back normal. &before all of this, basically since she started to walk she was unbalanced and fell a lot. Anyways after all these test came back normal they started to lean towards autism. She was set up with a speech therapist and play therapist. She did regain a lot of her speech, but is still distracted, doesnt converse (as in conversations) with us. She met with a behaivoral and developmental specialist and he concluded that it wasn't autism and he would meet with her again right before her 3rd birthday. But the more her pediatrician, her therapist, and my family consider it. They pointed out that autism usually leads a child to communicate only when they need something, avoid hugging, and pretend play. Which she does do all of that. But now I'm at a point where her doctors think she's a " average 2year old" but I don't feel the same.
SO..
She has a couple "qurks" that I'm very concerned about.
First she goes into this very intense trance that only last about 10 seconds. When this happens in can be mid sentence she freezes and blankly stares her pupils get larger and her chin goes in towards her neck. And I can not regain attention until its over, the rare times I do she becomes violent and mean. This can happen 0-5 times a day. Which her doctors never had a chance to witness themselves, I recently recorded one of the episodes and plan to play it for her doctor.
Secondly she is terrified of swings, tricycles, etc.
She awkwardly kisses every child she sees, and sometimes licks myself and other family members. She has this weird leg movement she does while she's in her carseat. It looks like her diaper is full its sort of a leg kicking motion. Another thing she does is while were in public she'll insist on kissing and hugging every other child she sees but refuses to talk to other adults. She acts as if she doesn't hear them and she looks down and mumble to herself in a baby like jumble.
And her doctor thinks she might have some sensory issues.
Btw. She also eats very little. I mean its extream i get desperate for her to just eat anything. And she has trouble staying still and falling asleep. Some days she'll refuse to fall asleep and literally hold her eyes open until 2-3 am.. ive tried putting her in the dark. Playing lullabys. Not letting her nap, swaddling her in a fleece blanket. Rocking her. Books
Warm baths.. everything
....
I've heard of a couple diseases and diagnosis that seem to match.
- Petit mal
- Sensory ocd
- Sensory integration dysfunction