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Tourette's Syndrome

6 replies

EmmaM · 28/02/2002 08:54

Did anyone see the programme last night on Tourette's Syndrome? It really moved me. I just wanted to hug little Greg. It was so obviously distressing for him and he was such a sweet kid. I do hope his symptoms don't get worse and they will eventually disappear.

It was good to see how the other boy, now grown up, had coped. What a wonderful, amazing sense of humour. I think he is very brave not to allow it to affect his life and work with kids. I was very touched that the children he was with didn't seem bothered at all. Its weird, kids can be so cruel, yet they can also be so accepting - more so than adults.

A moving, inspiring and educating programme.

OP posts:
jessi · 28/02/2002 12:31

Hi EmmaM, I saw some of it, but had to switch it off. I just found it too upsetting watching that poor little boy. He was adorable and I thought his school were great with him. The other guy was amazing too, so brave. The comment that the mother made about 'how you never appreciate what you had, until its gone' really made me think and put certain things in perspective. Out of interest, did they find out what the genetic link was for Greg? As I said, I didn't watch it all, but his parents didn't seem to have it and I thought the mother said it was inherited?

ChanelNo5 · 28/02/2002 12:37

I remember this programme from when it was on first time round (showing my age now!). I think Tourette's Syndrome is a terrible thing to suffer from as it can all too easily be seen as extreme anti-social behaviour rather than a genuine medical condition. I really hope that Greg's condition will improve as he reaches adolescence as sometimes can happen.

John, the older boy (well man now) has grown up into a well-balanced, pleasant adult considering the problems he has had. I too was very impressed with his sense of humour, and I suspect that this is what has kept him going.

Marina · 28/02/2002 12:44

I was watching ER and meant to video this. Sounds like I missed a good programme.

Rhubarb · 28/02/2002 13:50

Why didn't they get Greg and John together? I am sure he could have inspired the little boy with his bravery. Seems odd that they didn't bring the two together in the programme.

I was deeply moved too. I must admit that if I heard someone shout out "f*k" and "c*t" in my direction I would probably confront them. Now I might assess the situation more closely. How absolutely awful for the pair of them. I do hope Greg's tics stop eventually, it was heartbreaking to watch him get so upset by it.

winnie · 28/02/2002 17:04

Rhubarb, I had exactly the same response as you did. I hope I will question what I think I am seeing in future too. EmmaM, it was indeed educational, inspirational and moving (and I only caught about ten minutes of it)!

Melly · 28/02/2002 21:38

agree with you all, what a really moving programme it was, didn't your heart go out to both of them and their families. It's a shame there aren't more of those type of documentaries which make the general public more aware of these distressing and probably little known about conditions. Like you Rhubarb, I would probably have reacted in the same way, so it's good to see that the BBC are putting out these informative programmes, rather than the usual dross that we seem to have to endure these days.

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