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Loss of a twin: when to discuss and how

30 replies

TreaterAnita · 02/11/2013 23:57

Brief history: son was an identical twin but they developed severe twin to twin transfusion syndrome and I had to have emergency surgery to separate the interconnecting vessels in the placenta. Twin 1 was the donor twin so tiny and basically shrink wrapped in his own amniotic sac, twin 2 was about twice the size and on pre-surgery scans was basically bombing around in his amniotic fluid swimming pool. The general consensus at the time of surgery was that T1 had poor prospects but T2 would be fine. In fact T2 died within a week but T1 made it through and started to grow again and was born at 32 weeks weighing 2lb 12oz. Just to make life that little bit more heart stopping, he then got incredibly sick with an infection, started to recover, had a TPN line put in which migrated to his lung and nearly drowned in the feed until they realised what was going on. He eventually came home on a smidge of oxygen which he came off pretty quickly, and although he has managed to meet every milestone at just about the last 'normal' point, is basically now a happy, healthy, talkative and bloody cheeky 3yo.

We looked into antenatal twin death a lot when T2 died (I was resting up in bed for a while and had a lot of time on my hands). A lot of the stories related to people who'd been told in much later life and had apparently ascribed a general sense of 'loss' in their lives to this event that they had never known about. Husband and I are both natural born cynics, and we both felt that actually most people, if told they had a lost twin, would feel some 'loss' about that, just by virtue of the fact that life is sometime a bit isolating, so neither of us were convinced that he will actually ever really remember unless we tell him.

My view was that we should just deal with it at a very young age, but husband felt it might be better never to say. I felt that that was quite wrong as someone else (parents, friends) might let it slip (although in reality we are the only people who ever mention T1, I think everyone else is worried about upsetting us).

When I was in hospital after son was born I had a very brief session with a nurse-counsellor there (it was an excellent hospital medically, but given what we went through, the emotional support side was fucking disgraceful) and she basically said that we really ought to tell him, so we made up our minds that we would.

Naively, given that this was pfb, we thought that we could probably do this at about 2, but he's now well over 3 and he would be confused to shit if I started talking about his non-existent brother and I'm sure he'd look at me with his 'mummy's gone a bit mad' face (mostly used when I tell him it's time for nursery and he's playing with his trains) and inform me that he doesn't have a brother.

So, at the end of that (not very brief) history, how long do we wait to tell him and, if anyone has done it, what do we say that a) doesn't upset him, and b) doesn't make him think that we're going to suddenly produce a brother?

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MaryMotherOfCheeses · 04/11/2013 21:12

Sorry, just seen your question about how I broached it. I can't remember exactly, but I think I just took the opportunity very casually when he was talking about brothers or something. It would have been along the lines of "well, you nearly had a brother, we were very sad that he didn't make it" and then explained about having two babies in my tummy. I remember DS did look very surprised and said "that's very sad", but he wouldn't remember finding out now.

Not sure if that helps but I've always tried to be very matter of fact about it, and that seems to have worked ok.

TreaterAnita · 08/11/2013 02:09

Thank you so much for all of the responses, and apologies for not replying till now (bit of a stressful week at work sorting out a different family's issues).

Having read everything, I think I am going to tell him as soon as the 'babies' conversation comes up (it hasn't yet, we know no pregnant people at the mo, if all goes well I may be the next) and then just explain very practically what happened with him and his brother (but kindly, obviously).

And thank you so much for all of you who were so concerned for me, but I am, if nothing else, Mrs Pragmatic, and married to Mr Pragmatic, and while I couldn't get out of bed for 2 weeks after T2 died, and it all resufraced when T1 was sick, I am so phenomenally grateful that this 'miracle' pregnancy resulted in one healthy, gorgeous baby after everything we went through, he would struggle to say anything that would really upset me. I am really only concerned about him, and how I can tell him about his birth without giving him a major sense of loss.

(I don't mean by the way to denigrate anyone else's sense of loss, we all deal with things individually, and if T2 had survived to birth and then died, I don't think I could have been so phlegmatic.)

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JugglingFromHereToThere · 08/11/2013 07:59

Every baby is such a miracle I think Anita and is so wonderful you have your gorgeous DS. I think I would try to think of things as you do but don't know if I could be quite so brave. I think you're awesome, but as you say everyone experiences loss and grief in their own ways.
I think your approach with DS will be just right, to tell him quite straight-forwardly and kindly, so that he knows, but doesn't have to go through everything that you did on your journey to have him. In a way that's what we all do in telling our DC their birth stories ?

HerrenaHarridan · 08/11/2013 08:23

So glad you've decided to tell him while he's young.

I'm very much in the children just deal with things camp.

I'm sorry to hear of all your painful losses Sad

TreaterAnita · 14/11/2013 00:26

I've only just seen the last couple of replies. Thanks to both of you for your kindness. I'm certain now that we'll tell him soon, hopefully it'll be a new bump of mine that gives us the perfect opportunity.

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