Hypermobile 2 year old, not walking. Anything else I can do?

[Birdies]

My DD1 is a long way from walking. She has loose ankles, knees, hips, wrists. Pretty much all her joints. She goes to physio once a month and we have to put her in a stand for an hour a day. She will be getting a tight suit for the lower half of her body soon.

She has just started going up on her knees but she's very wobbly.

If anyone has experience of this, is there anything else I can do to help her? I'm wondering about getting specialist gym equipment like you see in todder classes (where they have to clamber over things). Or lining up toys on the sofa to try to tempt her to reach up. Anything else I can do?

Thanks

[Sunisshining12]

Hi to all those who asked recently. Well my LO is 7 now and uses a wheelchair as very limited mobility. Attends mainstream school and is very bright. But not able to run, jump, skip or any of those things. Can take steps but it’s not really walking.

We did thousands of hours of physio, swimming, equipments, alternative therapies. You name it, we did it.

what I know now it that physio cannot solve the over all problem. It can help manage and improve limitations for some, but it won’t make the global diagnosis go away.

diagnosis took 2.5 years of constant tests and chasing.

Genetics are what got our diagnosis so I would recommend to push for an appointment with a Geneticist. Check if you have any private health cover (I didn’t but wish I had took it out the moment I thought something was wrong)

You will learn so much along the way. Just keep fighting, asking and pushing for a diagnosis