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Original poster

What happened to all those babies who had developmental delay??

16 replies

Browniesmum · 21/05/2013 10:22

Hi I never hear about the babies who were delayed, what was there outcome? My lo is quite significantly delayed and in the process of undergoing tests from neurologist physiotherapist and blood samples. I just want to know what happened to all of you that went through the same?

OP posts:
DeWe · 21/05/2013 10:32

You'd be better posting this in special needs, I think there's some people there you have children with development delay. They're very supportive there and I'm sure some of them will be happy to share their experiences.

Original poster
Browniesmum · 21/05/2013 10:36

Oh thanks, I'm new to this site!

OP posts:
Beanypip · 21/05/2013 18:46

My dd has developmental delays. I've written many a post on it. She is 15 month old now had been sitting for 2 months and had finally started bum shuffling! She's been to see a consultant and got the results from her MRI scan. How is your dd delayed? In her gross motor skills or speech etc? X

Beanypip · 21/05/2013 18:47

That's if it is a dd just realised u never actually said so! Sorry

Original poster
Browniesmum · 21/05/2013 20:19

I'd say he's delayed in both speech, no words yet and no movement. I'm new to this baby blog lingo what's dd? What was the result of your little girls MRI?

OP posts:
firawla · 21/05/2013 20:23

dd is daughter.
one of my boys is delayed, i wouldnt say very very - but he was delayed in all the usual milestones in all areas, he's diagnosed with autism now. he's still delayed but he is doing quite well, always progressing although at his own rate

Beanypip · 22/05/2013 12:21

There's a list of all the mumsnet lingo somewhere on the site not sure where though.

How old is your son?
The MRI results were not what we was expecting we was expecting there to be a problem with her bones but turns out she's got brain damage which seems to be the main reason for her delays. But she's a little monkey and to look at her you would never guess especially when she's being cheeky.

Original poster
Browniesmum · 22/05/2013 12:41

My son is 14 months old, I do get worried about autism actually but if he has that then fair enough what will be will be. My son had enlarged brain ventricles throughout my pregnancy called ventriculomegaly and it is linked to developmental delay. Who knows until he has the MRI etc. how did she get brain damaged? Do you know? And what age did your lo one get diagnosed with autism firawia?

OP posts:
firawla · 22/05/2013 14:52

a couple of months before he turned 3

Beanypip · 22/05/2013 22:03

Is he in the process of having tests done?

We have been lucky with all the help we have had with her it all seemed to follow on from each other. I think we see every health profession going! Speech and language therapist, physio, portage, dietitian, both neonatal and paediatric consultants.

The doctor thinks the damage seems to have been during labour. Not sure what he said after that as I looked away and concentrated on playing with her so the doctor didn't see me cry!

I know not everyone's as lucky as us to get all the help early on (even though she hates them all and screams every time we see them!) Do u have the help u want/need?

SomethingOnce · 23/05/2013 20:17

Browniesmum

www.mumsnet.com/info/acronyms

Original poster
Browniesmum · 24/05/2013 21:12

I hope that once he starts to see the right people it will help him out a hell of a lot. He had to be resuscitated at birth but I thought the whole labour went really smoothly so not sure it's related to that! Early intervention is so important I think, it's sad some kids just don't get it. I must admit I know a few people in the nhs who have been great and fast tracked us otherwise I'm sure I'd be waiting a lot longer for the appointments I have. Will you please keep me informed on your Lo's progress beanypip?

OP posts:
Beanypip · 24/05/2013 21:30

Glad he's getting the help u want. I think without the early intervention we had she would be really behind. It's hard isn't it when all the other babies around u seem to be doing everything early and running about while yours is sat there gets me down sometimes but I wouldn't change her for the world. Feel free to message me anytime x

Albaba · 30/05/2013 13:45

Hi there. Can I join in as well please? My daughter has been diagnosed as having development delays in her gross motor skills. She is 20 months old actual and 18 months corrected age. She has low muscle tone in her trunk area and is nowhere near walking. She is now at the stage were she can pull to standing when holding on to furniture. We have been going to physio now for months and when she first started going she couldn't even sit unaided. We are now working on side stepping. She is bright and has lots of words. No other issues apart from her lower half of her body seems to be weak. She had a MRI scan done and it has shown a lesion on her brain. We were told this by Consultant over the phone and are to meet with her to discuss what this means. I am suspecting cp but am really hoping I am wrong.

What makes it worse is that my daughter is a twin. I had IUGR, discordant growth and problems with the blood flow between the babies when I was pregnant. The affected twin was the bigger of the two and the one that we weren't particularly concerned about. Ironically the smaller and weaker of the two is now walking, climbing stairs and climbing all over the furniture. It is really frustrating when I see children of her age and younger doing more than she can. I also have a permanent reminder of this in her twin sister.

OddBodd · 30/05/2013 20:17

My 17 month old has been under the paediatrician since he was 9 months. He at that point, wasn't sitting, crawling or moving in any way. He could roll but that was all.

at 14 months he had mastered sitting but still wasn't mobile. He had x rays to check his hips and joints, blood tests to check for muscular dystrophy and other muscle disorders, the next step was brain scan but we were refered to physio in the meaan time who diagnosed him is hyper mobile. So basically he's double jointed and has low muscle tone in his legs and trunk.

He is still under the physio and just since seeing her he's now crawling (at the speed of light!) pulling up, cruising round the furniture. We are now concerned that his language seems a little delayed. He has about 8 words but not all clear to anyone other than myself and DH.

I am not sure what the end result will be. We've had so many worries and concerns over his deveopment. I just keep hoping he will catch up. I feel so sad when I see people and neighbours with children 6 months younger than him who are already up and running while my DS is still crawling everywhere. It is a worrying time.

I hope you get all the help and support you need. x

CPtart · 30/05/2013 20:37

My friends son had GDD. Diagnosed with ASD at 3 years old.

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