anyone else dealing with 'just' low muscle tone?

[wonderinglonely]

I expect I am about to explain this quite badly. I have posted a few times about DD who has hypotonia. She coming on reasonably well with physio and OT help and seems to be getting on fine at school, though I worry a bit about handwriting etc due to motor skills delay (she was a late walker). Her coordination is improving and dressing etc is ok, if a bit laboured.

Anyway, I know that low tone can also be a symptom of/associated with other conditions. However, I think she is a bit too young for a dyspraxia diagnosis, for example.

She did a lot of flapping when she was younger though this has abated (still does a bit of tapping when playing on her own). She is almost 6, reasonably sociable if a bit shy and seems to have formed particular friendships at school.

Could she just have low tone or are there inevitably other issues? Is anyone out there who is just a bit badly coordinated and bendy?

thanks, sorry, I meant this to be short!

you need to be on the eds thread. it's usually around in the first couple of pages on the sn board.

can't remember what it's called, but it's eds, or ehlers danlos syndrome somewhere in the title.

and it's about 50 pages long iirc, i don't think you'll be alone for long.

here you go - this one

there are so many of them apparently they are on their second thread! who knew?!

everything you wanted to know about low tone and more besides.

(dd2 also has low tone, but hers is caused by cp)

thanks mad, off I go...