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how do i get a diagnosis for my 4 year old?

37 replies

lisa6967 · 11/04/2011 23:38

my son is showing signs of autism/asperges syndrome, my health visitor involved, my son has had educational pyschology asessment done and the SENCO at his school also think he his. What do i do next?

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MavisEasterbunny · 11/04/2011 23:40

has he been referred to a developmental paediatrician??

amistillsexy · 11/04/2011 23:41

If the Ed Psych's assessment indicated that an assessment was needed, they would have said so, surely? What did he/she say?

lisa6967 · 11/04/2011 23:45

seen peadiatrician,he put on letter he thought he was showing signs if comunication disorder ie asperges, ed psychs have said maybe a statement might be needed whe he starts school in september, he is still at nursery at the moment

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lisa6967 · 11/04/2011 23:46

he is seeing SALT on 19th may aswell

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lisa6967 · 11/04/2011 23:48

ed pychs say have to go back to gp for diagnosis dont know what to do next?

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MavisEasterbunny · 11/04/2011 23:49

With dd I highlighted concerns about development to HV and it rolled on from there,she saw a developmental paed and then other agencies came on board.Good that hv and SENCO are involved already.Is he already at school?Hopefully if so and he has seen Ed Psych you should be able to commence getting a diagnosis and potentially getting him a Statement.I am sure if you post in Special needs you will get lots of replies.

very hard all of this stuff,remember it well,DO try the SN board,they are all lovely and very supportive xx

MavisEasterbunny · 11/04/2011 23:51

DO go back to your Gp,did the Ed Psych write anything down for you,minutes of meeting or a report?If you ask you could then take this along to Gp xx

amistillsexy · 11/04/2011 23:53

A statement is separate from a diagnosis-one is not necessary for the other. If your Ds has been seen by an Ed Psych and a Paediatrician, and they both think that there is something to investigate, then they are probably already putting the wheels in motion for the rest of the multi-agency team to get involved.

You need to contact one of them and ask them for their opinion, and if they think a multi-agency assesment should take place.

If the Ed Psychs think he has SEN, do Nursery agree? Why not start the statementing process now so that you have a head start? If he is on School Action (I think it's called Early Years Action in nursery) or SA/EY +, you can apply for a Statutory Assessment yourself.

Be careful, though, it can be tempting to want to 'get things moving', but once they start, you can feel as if you're on a runaway train! It might be better to decide which will help your DS most at this point in time- Statement or diagnosis, and persue just one of them at a time.

MavisEasterbunny · 11/04/2011 23:53

What about HV?if they are worth their salt they should have brought this to attention of Gp also.

MavisEasterbunny · 11/04/2011 23:57

Yes sorry maybe I was being a bit conflicting in my input,good to get a diagnosis initially,then hopefully as prev poster has said other agencies can do a multidisciplinary assessment,you need your Gp to refer you to a developmental paediatrician for a diagnosis.

amistillsexy · 12/04/2011 00:00

I had several HV come out to me when Ds was 3/4 and I was having a dreadful time with his behaviour (I had 2 LOs as well as DS1, and he was very violent towards them as well as me).

The HV were less than useless. One ran away when DS threw bricks at her down the stairs! (Ok, don't blame her for escaping, but she never came back, or contacted me again, and didn't make any report about it!).

Recently, one came out to see DS3 who is now 3.5, and saw DS1 (now 7 w with a full statement and DX of ASD), and told him off for not sharing with me when I was playing with him! He immediately went into meltdown at being told off for his normal (actually, good for him, as he was playing alongside me without getting worked up, and being watched too!) behaviour, and she continued to tell him off for shouting at visitors in Mummy's house!

I was glad when she left. She didn't do anything to get us any support either! [sceptical]

amistillsexy · 12/04/2011 00:01

Mavis, my post at 23:53 was not going against your advice- I X-posted with you (I'm a very slow typer!).
Grin

amistillsexy · 12/04/2011 00:06

Lisa, just seen your comment about Ed Psych saying you have to go back to GP.

Your GP will be the one to instigate an assessment. All you have to do is go and see him/her, tell them some of the things that have been happening that are concerning you, explain that he's been seen by Paed, Ed pych, etc, and ask if he thinks you should be referred for an assessment.

Your GP will probably not know much about ASD, but will refer you on to the local assessment team if he/she thinks it is implicated (just as they might refer you for physio if you had an injury!)

MavisEasterbunny · 12/04/2011 00:10

:) I am a little confused for the op though,having re read thread properly.She has seen the paed,SENCO and hv involved,told child has communication disorder,now asked to see Gp again??Op I would ask why since paed has given their input.FWIW you can still apply for a Statement to help your child.I hope you don't mind me asking but is your child delayed or "different" in 2 or more areas ie,speech,socialisation or mobility,if so you may qualify for Portage (I am crap at links,so sorry) bur Google.If so they are brilliant and do act as advocates for parents and were a godsend to me xxx

MavisEasterbunny · 12/04/2011 00:12

portage.org.uk

MavisEasterbunny · 12/04/2011 00:18

You can self refer too

lisa6967 · 12/04/2011 00:19

hanx everyone, my son has good speech and mobility, just odd behaviour i.e repetitiveness, handflapping, and lack of social skills, HV been great she wants to push for diagnosis, should i wait for SALT to see him first? Like i say though he does talk very well, its just the way he comes across to people, SENCO want to push for statement to, but ed pyschs say need to get more people involved with their reports first so have enogh evidence to put infront of panel for statement and diagnosis

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MavisEasterbunny · 12/04/2011 00:25

I would go with your SENCO and HV first,DO push for Statement.(Of all the professionals I saw I felt the Ed Psych was the worst,just a personal thing,she reduced me to tears!,everyone else was fab)The sooner you get help in there the better,the full Statementing can take a while.In the meantime wait on the SALT,but the one thing I have found as a mum with a SN child,DO make your voice known,push for a statement.Like ami said though,it is a rollercoaster.

MavisEasterbunny · 12/04/2011 00:33

Oh and do go and say hello to the Special needs ladies/gents.I have found the special needs boards to be a lifeline.dd isn't on the Autistic spectrum but there are a lot of mums on the board who do have children with ASD.Best wishes,Mavis xx

Niecie · 12/04/2011 00:35

Did the paed talk about referring you on to others? It sounds like they haven't done a dx but have acknowledged that other professionals need to be involved. I think going back to the GP at this point might be unnecessary unless the paed is for some reason not referring on for a formal dx.

The way it works round here is that GP refers you to a paed and the paed does an assessment to see if there are issues and then refers on to the people who can make the diasgnosis - the clinical psych or psychiatrist and usually a SALT and an OT and maybe others (DS had his hearing tested for example to make sure his behaviour was the result of not being able to hear). It maybe with the SALT appointment already lined up that you are on to that bit now.

After that, when everybody had seen him, the paed, clinical psych, SALT and OT got together at the end, with us and the SENCO from the school (DS was at school by then but was in nursery at the start of the process) and came up with the AS diagnosis.

Everywhere is a little bit different but you need to check whether the paed was initiating a team dx or whether some how or another you have hit a dead end and they aren't actually going to refer you on to the people who make a decision. I think I would phone the paeds office if I were you, and see what is happening as a result of the report you have.

My personal opinion is that it would be better to know for sure what you are dealing with before embarking on statementing but that is just my opinion. In theory you don't need to have a dx to get a statement but it should be more harm than good to have one. I agree you need to focus on one thing or another though.

I wish you all the best - it all seems horribly confusing in the beginning but it should sort itself out eventually if everybody is dong their job. Smile.

Niecie · 12/04/2011 00:41

Oops a bit of a x post there.

We have never seen an ed psych so I am not sure what they can help with but I think Mavis's experience with them is not ususual, especially as far as ASDs are concerned. They aren't qualified to dx ASD so in the early stages are I am not sure what the point of them is. I think they have confused the issue a bit really and it was a shame they were brought it in so soon.

cat64 · 12/04/2011 01:07

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lisa6967 · 12/04/2011 13:02

the pead referred alfie for salt and audio and blood tests for fragile x syndrome, audio and blood tests were normal, still waiting ti see salt on 19th may, have been told by KIDS today they are reluctant to say anything is wrong due to lack of funding and cut backs!!! KIDS coming to my house tomorow to see ed pyschs report

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cat64 · 12/04/2011 13:50

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lisa6967 · 12/04/2011 16:57

had health visitor on phone today, she told me she wants to just go for it, (a diagnosis and statement) as the process will take forever anyway, she has rung SALT today aswell and they have told her my son will just go thru triage first and a report will not actually be done, so do i start the ball rolling now??

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