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Graves disease. What were your experiences after initial diagnosis?

3 replies

GreenFries · 29/07/2026 11:40

I've been diagnosed with graves disease - following on from being diagnosed with coeliac disease two years ago. My initial symptoms were light headedness, heat Intolerance and muscle weakness. My heart rate is normal a lot of the time and I don't have palpitations or weight loss or trouble sleeping. I'm a few weeks into Carbimazole.

I feel worse than I did when diagnosed. It's probably the heat contributing - but I feel lightheaded when standing and have to keep lying down. I'm fatigued and my brain feels foggy and unable to think too hard. Work has become difficult. I had to take today off as I need to lie down but I've been reluctant to take time off not knowing how long this will go on for. And some says I'm fine. A lot of the info online doesn't even feature fatigue as a major symptom of an overactive thyroid.

Anyway, I'm just feeling a bit crap with it all. Most people have knowledge of this and can't relate to how I am feeling.

OP posts:
myladyjane · 10/08/2026 17:42

Hello, I think I may be joining you soon. Got my blood test results back today and they indicate hyperthyroidism. In the past I have tested positive for thyroid antibodies so I think Graves’ disease maybe likely. I am having another blood test in 2 weeks and we’re going from there.

i have been losing weight and feeling dizzy/light headed but been sleeping like a log and my heart rate seems fine.

so no info but solidarity

GreenFries · 18/08/2026 14:49

Sorry to hear this. I have discovered dizziness can be a side effect of the Carbimazole 😖

OP posts:
DaftNoodle · 18/08/2026 16:14

I was diagnosed coeliac 20 years ago and then Graves’ disease 4 years ago. Following diagnosis of the graves and starting medication I felt worse before I felt better. It took a few months then I started having better days. I was on medication for 18 months and have been in remission ever since 🤞🏼🤞🏼🤞🏼

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