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Autoimmune disease

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Graves disease. What were your experiences after initial diagnosis?

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GreenFries · 29/07/2026 11:40

I've been diagnosed with graves disease - following on from being diagnosed with coeliac disease two years ago. My initial symptoms were light headedness, heat Intolerance and muscle weakness. My heart rate is normal a lot of the time and I don't have palpitations or weight loss or trouble sleeping. I'm a few weeks into Carbimazole.

I feel worse than I did when diagnosed. It's probably the heat contributing - but I feel lightheaded when standing and have to keep lying down. I'm fatigued and my brain feels foggy and unable to think too hard. Work has become difficult. I had to take today off as I need to lie down but I've been reluctant to take time off not knowing how long this will go on for. And some says I'm fine. A lot of the info online doesn't even feature fatigue as a major symptom of an overactive thyroid.

Anyway, I'm just feeling a bit crap with it all. Most people have knowledge of this and can't relate to how I am feeling.

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