Sjögren’s at 30 – anyone living well with it?

[TheBoldQuail]

Hi all,

I’ve just turned 30 and have recently been diagnosed with Sjögren’s. My eyes are really bad at the moment... they’re constantly dry and I can’t even cry, which feels really unsettling.

I’ve been reading things online and, honestly, some of the stories have really scared me.

I was wondering if there’s anyone here who’s been living with it for a long time and is doing well? I’d really appreciate hearing some more positive experiences.

Thanks so much

My mum has it. She's been diagnosed around 20 years now. She takes medication to slow it down. She does have health issues but has not reached the point of some of the horror stories - liquidised meals, being bed bound etc. Overall, considering she is nearly 80 (which I know puts her in a different category to you) she does well.