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Autoimmune disease

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Has anyone found dietary support helpful for managing autoimmune thyroid disease?

8 replies

Gerbera55 · 27/04/2026 19:59

My thyroid has been completely out of control since my baby was born and today I’ve had my Levothyroxine dose upped (after my symptoms worsening was put down to being possible PPD). My latest bloods are:
Free T4 - 12.7
TSH -11.3
TPO - 720

I’m wondering if it would be worth seeing a nutritionist/dietician to help manage my thyroid via diet - has anyone had experience with doing this and can let me know if it helped? Thanks!

OP posts:
cherrymum80 · 03/05/2026 07:58

Dont know much about dietary advice, however since my diagnosis with Hashimoto's 5 years ago I've learned that my TSH levels need to be below 1 in order for me to feel normal (yours is currently 11). Dr's have said its fine when below 4, but keeping it under 1 with levythyroxine has meant I feel normal. Just something to consider. My most recent numbers below, my result next to normal ranges:

TSH 0.71 mIU/L 0.27-4.20
Free T4 20.9 pmol/L 11.9-21.6
Free T3 5.4 pmol/L 3.1-6.8

LividArse · 03/05/2026 08:14

When I was first diagnosed I went all out to sort it out (was having IVF and needed to be perfect for it to work).

I bought a book by Izabella Wentz called The Hashimoto's Protocol and basically went gluten free based on the book. Should have been dairy free too but the gluten was restrictive enough!

Basically I went on to get thyroid under control, have a miracle baby and then after a few years of being gluten free and with a small baby during covid I gave up all the giving up because it was just too much effort at the time. I did feel better gluten free, and should probably get back on it.

In your case I would read the book, implement as much as you can, and find a doc who you think is paying attention. As per PP you should be around 1 to feel optimal.

SlightlyHeartbroken · 03/05/2026 10:35

LividArse · 03/05/2026 08:14

When I was first diagnosed I went all out to sort it out (was having IVF and needed to be perfect for it to work).

I bought a book by Izabella Wentz called The Hashimoto's Protocol and basically went gluten free based on the book. Should have been dairy free too but the gluten was restrictive enough!

Basically I went on to get thyroid under control, have a miracle baby and then after a few years of being gluten free and with a small baby during covid I gave up all the giving up because it was just too much effort at the time. I did feel better gluten free, and should probably get back on it.

In your case I would read the book, implement as much as you can, and find a doc who you think is paying attention. As per PP you should be around 1 to feel optimal.

All of this! Just to note I was diagnosed with coeliac disease as well as Hashimoto’s, have you been tested? Other autoimmune conditions often go along with Hashimoto’s, eg Addison's and type 1 diabetes are also in the family.

MabelAnderson · 03/05/2026 10:41

How long is it since your baby was born OP ? Levels can go a bit haywire and then stabilise, but your bloods at the moment show that you really need more thyroxine.
I have read that some dietary approaches can help, but personally I haven’t found anything that works. Basically trying to keep your immune system from going into overdrive is key, which means trying to avoid high stress. Hard with sleepless nights. You might find that after a while you need to reduce your dose as your thyroid regulates itself better. It’s all a balancing act and over time you can feel when things are out of kilter.

Gerbera55 · 06/05/2026 08:41

cherrymum80 · 03/05/2026 07:58

Dont know much about dietary advice, however since my diagnosis with Hashimoto's 5 years ago I've learned that my TSH levels need to be below 1 in order for me to feel normal (yours is currently 11). Dr's have said its fine when below 4, but keeping it under 1 with levythyroxine has meant I feel normal. Just something to consider. My most recent numbers below, my result next to normal ranges:

TSH 0.71 mIU/L 0.27-4.20
Free T4 20.9 pmol/L 11.9-21.6
Free T3 5.4 pmol/L 3.1-6.8

Yeah I’ve been referred to see a consultant, my medication has been upped in the past week so hopefully I’ll see a change soon.

OP posts:
Gerbera55 · 06/05/2026 08:41

LividArse · 03/05/2026 08:14

When I was first diagnosed I went all out to sort it out (was having IVF and needed to be perfect for it to work).

I bought a book by Izabella Wentz called The Hashimoto's Protocol and basically went gluten free based on the book. Should have been dairy free too but the gluten was restrictive enough!

Basically I went on to get thyroid under control, have a miracle baby and then after a few years of being gluten free and with a small baby during covid I gave up all the giving up because it was just too much effort at the time. I did feel better gluten free, and should probably get back on it.

In your case I would read the book, implement as much as you can, and find a doc who you think is paying attention. As per PP you should be around 1 to feel optimal.

I’ll take a look at this, thanks!

OP posts:
Gerbera55 · 06/05/2026 08:43

SlightlyHeartbroken · 03/05/2026 10:35

All of this! Just to note I was diagnosed with coeliac disease as well as Hashimoto’s, have you been tested? Other autoimmune conditions often go along with Hashimoto’s, eg Addison's and type 1 diabetes are also in the family.

I was tested in my last bloods but I wasn’t told I was being tested. My results were 4.13 g/l, the GP didn’t mention this to me and I only saw the results after the appointment so I’m presuming all is okay there.

OP posts:
Gerbera55 · 06/05/2026 08:47

MabelAnderson · 03/05/2026 10:41

How long is it since your baby was born OP ? Levels can go a bit haywire and then stabilise, but your bloods at the moment show that you really need more thyroxine.
I have read that some dietary approaches can help, but personally I haven’t found anything that works. Basically trying to keep your immune system from going into overdrive is key, which means trying to avoid high stress. Hard with sleepless nights. You might find that after a while you need to reduce your dose as your thyroid regulates itself better. It’s all a balancing act and over time you can feel when things are out of kilter.

Baby is 9mo. I was on 50mgc before conceiving, the fertility clinic were the ones who found my thyroid to be borderline. I was on 75mcg when pregnant and told by a consultant I wouldn’t need any when baby was born due to being borderline. I felt awful so was put back onto 50mcg, started to feel awful again so now I’m back on 75mcg.
I went to the GP when I started feeling unwell and was asked lots of questions about my mental health so it was almost a relief when my results came back showing my levels weren’t right and I needed more thyroxine, because I knew it wasn’t in my head.

OP posts:
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