Hashimoto's thyroiditis, endometriosis & adenomyosis

[Tiredrestless25]

Extremely run down...... been fighting loosing battles. Levothyroxine for hashimotos thyroiditis it does not stop immune system attacking thyroid, only keeps level of thyroid hormone up. Suffering stage 4 endometriosis all connected and attached at bowel apparently so dangerous won't operate. No medication helps constantly feel weak. Severe back pain and unable to walk more than 10 mins without getting Extremely sore. Any one struggling similar

What investigations have you had, have found so far? And what pain meds, medication and treatments have you tried? What meds are you on? Are you under a gyne consultant and are they helpful? It is exhausting being chronically, I feel the same.

Have you been seen at a BSGE centre? Mine was on my bowel and from the MRI she said she could do it but the bowel surgeon would be on call just in case
i have stage 4 deep infiltrating everywhere plus adenomyosis and hashimotos

when they got in there, she called him and he operated for 3hrs, I was under for 8.5hrs in total but she excised all the endo, took my appendix out and put a mirena in
that was 3 months ago and it’s been life changing so far

Hi, not sure how long since you were diagnosed with Hashimotos, but there is a protocol you can follow to find the root cause, basically finding your triggers, meaning you can massively reduce those attacks on the thyroid. Typically it’s, gluten, sugar, caffeine, alcohol, dairy. But everyone is different.
this should help with that run down feeling by taking pressure off your body.
you can probably find it online but there’s a book by Isabella Wentz, which walks you through it otherwise.
sorry you are going through this, when you are feeling like this it’s hard to see a way out.

I have had numerous blood tests regular last 2 few years. Had MRI, CT scan, numerous vaginal scans, hysteroscopy. I've been on naproxan, amitriptyline.

Last year I had to have a form of topical imiquimod immunotherapy treatment to fight high precancer cells. It drained the life out off me on top off all my other conditions.

Gynaecology said they need more evidence to proof the endometriosis is affecting my bowel and back even though the MRI picked it up as being on the posterior surface of uterus attached to bowel.

They just want to put a coil in..... but I refuse point blank to have an object in my body. Family members moved and had various infections which I don't need

So are you having excision surgery any time soon? Also why do you object to the mirena coil, it's very useful for many people, it's thins the uterus lining, and it will lead to less cramps and bleeding? Even if they don't think it's on the bowels just get them to check during surgery and then call a colorectal surgeon to help if it is, so it can be excised. Do you use opiods for the pain? As they should be willing to prescibe them with NSAIDs and if you are having gastro problems perhaps antispasmodic drugs as well?