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Dodgy Rheumatoid arthritis coach

6 replies

Allotmentblackfly · 07/08/2025 20:39

Have had severe inflammatory arthritis for nearly 2 years. On biologics, prednisolone and methotrexate. So called RA coach advertised on Facebook. I’m ashamed to say I took the bait of a rather hard sell of expensive coaching re diet, lifestyle and exercise. Four months in it was quite apparent to me that the diet was doing very little and I had become underweight. This coach insisted I was cured as my gut was cured, advised me to rapidly reduce my prednisolone and promised that he would get me off all meds and I would feel much better. At this point o left his programme feeling rather silly for being sucked in. There is evidence that diet can help and this is well known - what I was concerned about was his insistence that I was cured (in spite of rising CRP) and to stop prednisolone over course of a few weeks. This was in direct opposition to what I was told my rheumatology. Has anyone had similar experiences ? Also wanted to warn others…..

OP posts:
stayathomegardener · 07/08/2025 21:19

I ‘cured’ myself of RA through diet in 2017 unfortunately it came back post Covid infection.

It’s definitely possible to bring it into remission.

The key for me was no dairy.

Appreciate this perhaps wasn’t what you were asking.

There are a lot of charlatans out there unfortunately, balanced out by medics with little holistic knowledge.

Sympathies, it’s just rubbish isn’t it.

FakeMews · 13/08/2025 15:42

I think it's possible for anyone with a debilitating and incurable illness to be sucked in and you shouldn't blame yourself.
I don't believe in alternative therapies and I suspect you have to have "faith" for them to work. I think the illness is bad enough without having to deprive yourself in order to try quack diets.
Having said that in the early days I did try a few things.
Turmeric - nada
Gluten free - tried it for three months, zero effect.

But there is ALWAYS someone who evangelises about a miracle cure. Usually someone in rude health who's friend swears by xyz.

Twilightstarbright · 13/08/2025 16:31

The roots for joints study is a good study and based on actual science. However my rheumatologist told me that if I’m on a
biologic I’m not going to cure myself through diet alone.

NormalAuntFanny · 13/08/2025 17:37

FakeMews · 13/08/2025 15:42

I think it's possible for anyone with a debilitating and incurable illness to be sucked in and you shouldn't blame yourself.
I don't believe in alternative therapies and I suspect you have to have "faith" for them to work. I think the illness is bad enough without having to deprive yourself in order to try quack diets.
Having said that in the early days I did try a few things.
Turmeric - nada
Gluten free - tried it for three months, zero effect.

But there is ALWAYS someone who evangelises about a miracle cure. Usually someone in rude health who's friend swears by xyz.

When I started treatment my specialist said it was worth trying this as it helped some of his patients.

I did try it, completely, for two months and it made no difference to me at all sadly.

I'm sure it is worth trying but it certainly doesn't work for everyone.

I recently read a paper suggesting magnesium and iron supplements reduced the incident of arthritis - I think there's a lot of data out there but people are different and it's a complex disease.

Personally I don't believe any cure exists just better or worse mitigations, it's fairly safe to say anyone trying to sell you a cure is at best deluded and more likely a charlatan.

Sorry about your experience @Allotmentblackfly hope you got some fitness out of it if nothing else.

NormalAuntFanny · 13/08/2025 17:38

Whoops meant to reply to dairy free post! Sorry

NormalAuntFanny · 13/08/2025 17:39

PS also tried tumeric and gluten free to no effect!

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