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Autoimmune disease

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Does anyone wake up slightly trembling/vibrating?

19 replies

Kwb1234 · 29/06/2025 14:07

I sometimes wake up in the night or morning where my arms and legs are slightly vibrating/trembling this is the best way i can describe it. I am wondering if anyone else experiences this and if they think its anxiety?

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MrsEmmelinePankhurst · 29/06/2025 14:20

Yes I have this! In my case it’s my whole body, not just my arms and legs.

I hadn’t thought about it being anxiety - I’d assumed it was one of the many joys of perimenopause (I’m 53 and have had this for several years on and off). I’m autistic and as a result I can experience anxiety … also have fibromyalgia if that helps to narrow it down?

TheOtherRaven · 29/06/2025 14:24

In me, it's blood pressure dips while I'm sleeping. I have POTS and its one of my signs of dehydration/too low salt.

Beamur · 29/06/2025 14:25

How is your blood pressure?

Kwb1234 · 29/06/2025 14:31

@TheOtherRaveninteresting my bp does drop when im lying down

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Openthisdoor · 29/06/2025 14:32

So you don’t have an autoimmune disease but you’re wondering if this is a symptom of one?

Pleaseshutthefuckup · 29/06/2025 14:33

It is not anxiety.

I have POTS. It does weird things to you.

Don't even use the word anxiety once to a doctor if you want answers.

Kwb1234 · 29/06/2025 14:34

@MrsEmmelinePankhurstI am adhd and have anxiety/ocd too..its all hard to pinpoint I saw something online that it can be due to adrenaline/cortisol when waking up x

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Kwb1234 · 29/06/2025 14:36

@Pleaseshutthefuckupis this a symptom os POTS? I have seen its hard to diagnose.. i do have low bp when lying down after a period of time

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Streetsofgold · 29/06/2025 14:38

Yes, I have this too, and it's a whole-body thing, and quite unpleasant. Just Googled POTS, and it doesn't sound like that.

Pleaseshutthefuckup · 29/06/2025 14:44

Kwb1234 · 29/06/2025 14:36

@Pleaseshutthefuckupis this a symptom os POTS? I have seen its hard to diagnose.. i do have low bp when lying down after a period of time

It definitely can be. It can be all sorts which is the problem.

I'd recommend getting a BP and heart rate monitor and searching up how to test yourself. The medical profession is very much behind on this for the most part.

I'd purchase a home nutrition test also and look for one that especially covers iron, ferritin, B12, vitamin D. I think you can test magnesium - yes, that too.

The reality is - so many things can go on that doctors can't always see. They use measures for vitamin and minerals that are below standard when they test you. People can be told all ok when actually it isn't optimal.

You mention the word anxiety to a doctor these days, especially a man, that's your one way ticket to not getting support to explore other possibilities.

I recommend the above you sort yourself and go from there.

If you have ongoing mental distress from feelings of anxiety then that is another issue and obviously the doctor can talk medication if appropriate.

Kwb1234 · 29/06/2025 14:44

@TheOtherRavenmy bp is low after lying down for a while but my bp is usually abit low during the day too..just curious do you also get muscle twitches random spots?

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Pleaseshutthefuckup · 29/06/2025 14:46

Just to add. POTS is a symptom of a problem with the autonomic nervous system.

The autonomic nervous system runs through your body from head to toe.

Kwb1234 · 29/06/2025 15:09

@Pleaseshutthefuckupthank you for this..I will look into this now. They do..ive been going to the drs for muscle twitches and waking up trembling and they just keep saying anxiety but it doesnt feel right!

OP posts:
Pleaseshutthefuckup · 29/06/2025 15:54

Kwb1234 · 29/06/2025 15:09

@Pleaseshutthefuckupthank you for this..I will look into this now. They do..ive been going to the drs for muscle twitches and waking up trembling and they just keep saying anxiety but it doesnt feel right!

I'd read up on magnesium with those symptoms too. It's good to know your levels first. There are groups online ref the best types to take and how.

TheOtherRaven · 29/06/2025 17:10

Kwb1234 · 29/06/2025 14:44

@TheOtherRavenmy bp is low after lying down for a while but my bp is usually abit low during the day too..just curious do you also get muscle twitches random spots?

No, that's never been part of it. Internal trembling, feeling shaky and awful.

DemonsandMosquitoes · 29/06/2025 17:19

Yes. Full of adrenaline. Horrid feeling.

tinyspiny · 29/06/2025 17:22

I get this occasionally and in my case it’s low cortisol ( Addisons disease) .

frockandcrocs · 29/06/2025 18:27

I’ve had this too- I’ve fallen to the floor almost convulsing before (was investigated for epilepsy when I was younger, it was deemed to be seizures which ruined my career aspirations!), but I could hear my blood pulsing and was fully conscious- once I was able to recognise the feeling I learned to get on the floor asap 😂

I have high BP so the opposite end of the spectrum. (It’s not happened for a while, and has only happened a handful of times in the last decade, whereas when I was younger it was a few times per month).

FlorenceB19 · 29/06/2025 18:54

I get random vibrations in my feet or occasionally in my legs... it's usually only one sided (never in both legs or feet at the same time) it kinda feels like I'm standing on a mobile phone as it vibrates!! I haven't found any rhyme or reason for it! 🤷🏽‍♀️🙄

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