Thyroid Test Results

[OliviaH2]

Hoping to get some understanding as I am not able to see my doctor until next month due to no appointments.

3 Weeks ago I was told I have under active thyroid which I was put on medication for, last week I had a repeat blood test and today they have been reviewed and the doctor has written that “results show patient is not taking medication” when I have taken it religiously every day!

My Serum TSH level has come down form 25 to 12 which is an improvement, but I also had a new test done which was Se thyroid peroxidase Ab with a result of 67 iu ml.

I don’t understand how it’s written that I have clearly not been taking medication when I have every day.
Very confused and not sure if I should be concerned at how high that is when I am taking medication? Any advice or experiences would be great to hear. Thank you 😊

Three weeks doesn’t seem like a long enough gap to repeat the blood test but I may be wrong.

I’ve got an underactive thyroid and it sucks.

Please don’t worry about the result. When I was diagnosed my TSH was 72! After 3 weeks of religiously taking my medication it went UP to over 100! (I don’t know how far over 100 as they stop measuring it at that point!) apparently things can get worse before better after starting medication & you need to only retest after 6-8 weeks. I cannot fathom why the GP has written that you haven’t been taking it - it has got better, after all! It may be that you need a little bit more, but you should wait 6 weeks and see results then. It took 2 years for me to get my dosage right and my results stable. I have to take different doses on different days to keep my TSH low, but not too low, which I believe is quite common. Sorry to say, it can be a bit of a journey!

Are you taking the medication first thing in the morning? Then do not eat or drink tea/coffee for at least an hour?

3 weeks definitely doesn’t seem long enough to retest bloods - when adjusting my medication after being diagnosed underactive my bloods were always about 6 weeks apart. My tsh was 167 when diagnosed; I felt horrendous. Even now 6 years later it can shoot up randomly to over 40 and then I have to start the medication journey all over again. It’s definitely a journey as previous poster said.
Make sure you’re taking your meds first thing before any food and caffiene.
I hope you get sorted soon, it’s a really rubbish thing to have.

I was recently diagnosed with hypo - agree that based on what I've been told that's too soon to retest. I've had to push hard at my GP for more often than 3 months. I've found the Thyroid UK forum on Health Unlocked to be really useful - there are lots of knowledgeable people on there who'll even look at your test results if you're happy to share. All caveats that they're not medical professionals, but honestly they've been more helpful than my doctor a couple of times.

Sorry for the delayed reply, thank you for yours! Yes I am faking it an hour before any food or caffeine. Seems as though the test should have been done after a few more weeks rather than what the doctor asked?

Thank you for your reply, sorry for the delay in responding. Okay, thank you, that’s reassuring!