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Autoimmune disease

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Can anyone help??

2 replies

Mumofthree35 · 18/02/2025 19:07

Hi all,
Looking for a little reassurance I suppose...I'm feeling pretty low I have 2 year old twins and a 4 year old. I have psoriatic arthritis, started with severe aches and pains 6 weeks after twins were born, literally went from being pretty active to crawling in bed on my elbows and unable to walk without being in pain. I was diagnosed quickly and treated with methotrexate and sulfalazine. The methotrexate made me really sick so after nearly 2 years or persevering with it, I came off it. I am now waiting to go onto biologics (Adalimamub) Im hoping it will arrive in the next few weeks. My husband is pinning all our hopes this is going to work and change everything, but I'm nervous incase it doesn't help the way he thinks and the side effects.
I have gone back to extreme fatigue, painful joints all over and my psoriasis has gone a little out of control since christmas.
Just feeling like an awful mum as I'm in pain or to exhausted to play and entertain. Feel guilty I can't give my all to the kids. They don't get free hours from nursery until next January, (we can't afford to put them in sooner)but feel like this would benefit them and me for at least a day or two a week
We don't have much support as my parents are working and husbands family live abroad. I just feel like I'm failing them and my husband. Just feel totally burnt out. Anyway hoping to hear some success stories from anyone in similar situation?? Sorry for long post! Iv never posted on one of these before. Please be kind haha.

OP posts:
mynameiscalypso · 18/02/2025 19:10

You poor thing. PsA is horrible; I failed methotrexate and something else but was on humira for 8 years and it changed my life. I came off it for a while and then it didn't work so well so I switched to another biologic. I went from 95% psoriasis coverage and being virtually bed bound to being in remission quite quickly. There are plenty of options if humira doesn't work but it was a wonder drug for me.

Mumofthree35 · 18/02/2025 19:14

mynameiscalypso
This is so reassuring thankyou! I am literally bed bound at the moment, as soon as my husband finishes work I'm getting into bed with heated blanket on just to ease joints. Just feels a bit miserable. So I'm glad there are other options too I was a little worried this maybe the last one. So that's great to hear! Thankyou glad your doing well too. It is horrible to deal with I think people think Im just exhausted because of having the twins but it's so much more than that.

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