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Dismissive nurse practitioner

11 replies

Whatafustercluck · 16/01/2025 14:38

I have no diagnosis, but have suffered with digestive/ bowel related problems for around 30 years. Swing between constipation and diarrhoea, loads of gas and bloating, urgency for the loo.

Over the past year the joints on the right hand side of my body have become stiff and often painful. Mobility has decreased but I've just sort of coped with it (which has probably made things worse). My shoulder now grinds, pops and pings and is painful. It's now also starting on the left hand side - a bruised feeling where my thumb meets my hand, a general ache in the top half of my left arm.

I've had a satisfactory FIT and blood test results, so asked for a call because symptoms remain so something is going on. The nurse practitioner who called was very abrupt and I got the impression she thought I was time wasting. I'm not one of those who is always at the GP. I said that although I was prompted to get tests due to change in bowel habits (loads more constipation), I'm wondering if all the symptoms are linked. She said bloods were fine, and the last ones I did about 6 months ago (for the joint related issues) showed no RA. She said the bowel issues are likely due to diet. She reluctantly agreed to do an inflammation FIT test to look at IBS. I know I've got bloody IBS, I've lived with it long enough without formal diagnosis and tried to control it myself!

How on earth do i get them to listen and act about all the joint related issues? I feel about 15 years older than my actual 46 years and have begun to limp. Yes, I'm overweight and taking steps to try to address that (I already swim 3km a week) but I'm not huge and I just feel fobbed off.

OP posts:
fourelementary · 16/01/2025 14:40

Could it be peri menopause linked? Ask for some hormone bloods and read up on joint pain during peri?

SchoolNightWine · 16/01/2025 14:45

All of these things seem to get worse during perimenopause.
I'd do an intolerance test, as I thought I had IBS, but after cutting out surprising foods that I was intolerant too, my IBS symptoms, fatigue, joint pain and headaches all went or at least lessened.
I don't go to the gp now as also went with those symptoms at about your age, and just got offered antidepressants each time.

JC03745 · 16/01/2025 14:47

I too was going to suggest is it peri?
Are you hypermobile? Ehlos danlos syndrome? Have you ever seen a rhematologist? They don't just see people with rheumatoid arthritis.

Could you see a different Dr at your practice?

Whatafustercluck · 16/01/2025 14:57

Yes, i have wondered about perimenopause and have begun taking strong cod liver oil and multivitamins. I've also made changes to my diet (and do know that too many carbs can trigger symptoms). It's just so hard to get them to take me seriously and meanwhile the joint stiffness is getting worse and worse.

OP posts:
GreenEggs483 · 16/01/2025 15:10

If you want to talk about the menopause, you'd be speaking to the GP not a practitioner I think. Peri definitely causes some of what you describe.
Food intolerances definitely need looking into as well.
Does your surgery offer you a link so that you can add evidence re your conditions?
Someone I know created a portfolio and added it to the nhs tick chart for their condition ( not ibs but similarly, one of those conditions that looks like nothing when symptoms are looked at individually) My friend ticked off so many of the symptoms and provided evidence, that the gp did take them seriously.

This sort of thing

Oioisavaloy27 · 16/01/2025 15:13

Have you had your thyroid checked?

Boooooreddddd · 16/01/2025 15:14

Coeliac Disease?

LionRumpus · 16/01/2025 15:18

It doesn't sound right to me. Not all types of arthritis show on a blood test so she absolutely can't rule that out.

It could be hormonal, of course. But that level of pain does need investing.

I'd be asking for a referral to rheumatology with those symptoms.

Whatafustercluck · 16/01/2025 17:11

Oioisavaloy27 · 16/01/2025 15:13

Have you had your thyroid checked?

No. They've done nothing except blood tests and prescribed exercises for the joints.

OP posts:
2024onwardsandup · 16/01/2025 18:04

Insist on seeing a GP. How on earth could. Nurse practitioner diagnosis if you have a complex health condition. Infuriates me this delegation of medical diagnosis. Hardly a surprise how many too late diagnoses there are increasingly

OhcantthInkofaname · 16/01/2025 18:24

I'm not a nurse practitioner or a physician, but I am a retired nurse with some age and joint issues. The 1st things I thought of with your symptoms, aside from the GI ones, were carpal tunnel syndrome and your rotator cuff. You need a GP visit.

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