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Possible psoriatic arthritis- any early experiences?

9 replies

Violet1984 · 16/12/2024 23:30

Hi, I have struggled with pain/ stiffness in my feet for about 4 years. I also have Achilles tendinitis in both feet, pain in both elbows and knees. I get random aches and pains in my toes and my hand and fingers can be achy and stiff. I’m very stiff in the morning/ after sitting. I also seem to feel a lot of fatigue that can feel quite ‘crushing’ at times. I’m under a rheumatologist and have had ultrasounds- swollen knees, thickened tendons in Achilles and ankles and ‘neovascularity’ in one elbow though radiologist said at the time they were both inflamed. However, my blood was fine and x-rays show no joint damage and my fingers/ toes don’t look swollen. I’m awaiting an MRI on spine.
Does this sound likely for PsA? That’s what rheumatologist said she’s thinking. I sort of want a diagnosis as then they can give me something for it. However I’m worried too that it might be something. I’m also worried that if it’s not then it’s in my head!
Any experiences of early/ maybe mild PsA greatly appreciated as I feel like I’m losing my mind over all of this- it’s been going on a long time! Thank you 🙏

OP posts:
BigMuch · 17/12/2024 00:24

My DH has been undergoing various investigations for a good while now as he has symptoms similar to yous. Psoriaric arthritis was mentioned as a possibility. He's had blood tests, scans and MRI's. They've ruled out Rheumatoid Arthritis thankfully but still trying a to get to the bottom of all the random aches and pains and fatigue. He's so worn down by it and is basically living on painkillers and anti-inflammatories to manage the pain. Fibromyalgia was also mentioned but it's not that. The thing is, there's no wonder drug, even after diagnosis. It's all about lifestyle changes - diet, exercise, rest/sleep.

NormalAuntFanny · 24/01/2025 14:55

I have PSA and had your symptoms, including sometimes blood markers, sometimes not. Also had uvuetis and thankfully mild psoriasis, which I think pushed the doc to a diagnosis.

I'd push for treatment as soon as possible, even if you have to start on the less good drugs because it will slow the damage to your joints and being pain free is really good ! The drugs really do work once you get on the one which suits you.

I do think PSA is a bit of a 'mystery' arthritis because there can be so many symptoms but not a normal arthritis diagnosis, hopefully you have a sympathetic specialist who will be able to treat your symptoms even if they don't fit into a perfect diagnosis.

JadeSloth · 04/06/2025 20:24

Does anyone had similar rashes triggered by sun with psoriasis arthritis. I have all kind off joint pain but still on the research for diagnosis with doctors. All the waiting lists long and feels sometimes frustrating with all the pain have to experience. I have rashes always on the summer time then exposed to sun, even while using sun protection. Usually my hands but can appear anywhere and be extremely itchy.

Possible psoriatic arthritis- any early experiences?
Possible psoriatic arthritis- any early experiences?
OchonAgusOchonOh · 06/06/2025 13:22

I do sometimes get a mild rash that looks a bit like that.

Younginside · 07/06/2025 12:48

JadeSloth · 04/06/2025 20:24

Does anyone had similar rashes triggered by sun with psoriasis arthritis. I have all kind off joint pain but still on the research for diagnosis with doctors. All the waiting lists long and feels sometimes frustrating with all the pain have to experience. I have rashes always on the summer time then exposed to sun, even while using sun protection. Usually my hands but can appear anywhere and be extremely itchy.

This is interesting. I've just been to the GP about a series of unbearably itchy spots on my thigh. They are so small (2mm max) that it's hard to believe they itch so much! I too have these appear with sun exposure, first experience about the years ago. My psoriatic arthritis is mild so far, only badly affecting one toe, but it was diagnosed by 2 rheumatology consultants so I expect they got it right.
GP didn't think there was a link with psoriatic arthritis ... she thought it was something allergy related but I'm not so sure having read this thread. I have been prescribed Betnovate cream to calm it down and she recommended taking an antihistamine at night. Previously the spots have faded eventually so I'm expecting these to do the same.
OP, I hope this isn't hijacking your thread too much

imnotrobert · 07/06/2025 13:34

Hi OP, I have PSA, which started suddenly almost immediately after giving birth. Mine started similarly to yours, with pain in my feet and fatigue but no outwardly observable features if you see what I mean, like swelling or blood markers. I did have a history of psoriasis- the arthritis started around 10 years after my first psoriasis attack, which I think is pretty common. I was initially diagnosed with plantar fasciitis, PMT and slight fatness 😆

A couple of years later my symptoms suddenly worsened, with significant swelling around my knuckles. My knuckles get red and hot when they swell and I feel like I have flu. I was diagnosed very quickly once the swelling and redness started. Funnily enough, my feet really don’t trouble me much any more despite being my first symptom, it’s my hands that are the biggest problem now although my shoulders/knees/wrists are not great either. Supportive shoes have really helped my feet, I could barely walk for 2-3 hours in the morning before but proper arch support (including around the house) were a real turning point.

I take sulphasalazine to manage it, which works quite well in that I feel well far more than I feel ill, although I still struggle with flares. The flares are less frequent and shorter than they were before I started the medication. My rheumatologist wanted me on methotrexate but I ended up on sulphasalazine because I want to have another baby at some point- I didn’t really experience any side effects on it after the first day.

I highly recommend keeping a diary of your symptoms along with what you’ve eaten, whether you’re stressed, how much sleep you’ve had, how much exercise you’ve done, whether you’re on your period etc etc. Often, flares have a specific trigger and once you know what that is, you can try to mitigate it. My symptoms are 100% predictable because they start 3-4 days before my period and ease a few days after it starts. Obviously I can’t avoid periods (although I’m hopeful the pill might help once I’m no longer TTC) but knowing the trigger still helps loads, because it’s comforting to know when I can expect relief.

I was overweight when I was diagnosed and was told to lose weight, but I really struggled because I just didn’t have the bandwidth with managing work, small child and my condition. But, I finally lost 2 stone this year and the difference in how I feel is DRAMATIC. So, if this is a factor for you, it could be worth considering.

Keeping active as much as you can is quite important. My PSA can make me just want to flop on the sofa, but I’ve found that I can get deconditioned very quickly which leads to a vicious cycle of feeling worse, sitting more, and so on. I don’t do ‘workouts’ per se because intense exercise triggers my flare, but I make sure I do plenty of walking each day to stop my joints stiffening. If I’m really feeling too bad to exercise, I still make sure I get up very frequently just to stretch and move around, which has also made a big difference.

Best of luck OP, it is an unpleasant disease but there are plenty of things you can do to live well with it. For me, a combination of lifestyle changes and medication have really made things better, and at least I know when to expect flares so I can manage them better. If you have PSA, your flare triggers may well be totally different, so I really encourage you to keep track of symptoms and lifestyle factors to help you figure out which changes will be helpful.

OchonAgusOchonOh · 07/06/2025 13:36

Younginside · 07/06/2025 12:48

This is interesting. I've just been to the GP about a series of unbearably itchy spots on my thigh. They are so small (2mm max) that it's hard to believe they itch so much! I too have these appear with sun exposure, first experience about the years ago. My psoriatic arthritis is mild so far, only badly affecting one toe, but it was diagnosed by 2 rheumatology consultants so I expect they got it right.
GP didn't think there was a link with psoriatic arthritis ... she thought it was something allergy related but I'm not so sure having read this thread. I have been prescribed Betnovate cream to calm it down and she recommended taking an antihistamine at night. Previously the spots have faded eventually so I'm expecting these to do the same.
OP, I hope this isn't hijacking your thread too much

Do you have a rheumotology follow up appointment any time soon? Of not, maybe contact the rheumotologist to ask for one and get it checked out. In my experience, GPs aren't great with odd symptoms related to PsA.

Younginside · 07/06/2025 14:00

@OchonAgusOchonOh I don't actually - I moved house fairly recently and my rheumatology clinic said it would be best if I got a referral to my local hospital. It would be good to get on their books so I'll ask my GP; I'm lucky as apart from the skin thing I've not had any flare ups since moving

OchonAgusOchonOh · 07/06/2025 14:11

Younginside · 07/06/2025 14:00

@OchonAgusOchonOh I don't actually - I moved house fairly recently and my rheumatology clinic said it would be best if I got a referral to my local hospital. It would be good to get on their books so I'll ask my GP; I'm lucky as apart from the skin thing I've not had any flare ups since moving

Hopefully you'll get an appointment fairly quickly. I would advise taking photos in case it's cleared up by the time you get seen.

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