Pustular Psoriasis experience/advice

[MarsMama17]

Hi, I’ve just been diagnosed with pustular psoriasis after seeing a dermatologist. The GP couldn’t figure it out for nearly a year and now it’s reached moderate to severe when it flares up.

I’ve been given a steroid cream and protopic, after everything else failing to help. Apart from Enstilar.

The hospital is also suggesting I go on Cyclosporine (which I’m worried about taking that step).

Wondering if anyone else has experience or advice? What worked for them(medically or lifestyle changes). Experiences with immune suppressant medicine?

thank you x

I don’t have pustular psoriasis but a different blistering condition that affects my hands. It took the hospital cutting out one of the blisters intact to diagnose it. I’ve not had cyclosporine but have been on mycophenolate mofetil which is an immunosuppressant. I got on okay with it, was a bit tired when I first started on it and with each dose increase and my iron levels dropped a bit but otherwise okay.

it helped with my condition but unfortunately didn’t clear it up. I’ve also been on Acitretin, colchicine and dapsone though they might not be relevant to you as it’s different condition.

mine mostly affects my palms and they are a mess at the moment. I see the nurse once a week at my GP surgery to get them bandaged up so I can function while I wait for a special clinic at the hospital.

i hope you find something that works for you.